Evidence map›Paper›PMID 38816597›Full record

ArticleDigestive diseases and sciences2024

Unauthentic Information About Celiac Disease on Social Networking Pages: Is It a Matter of Concern in Celiac Disease Management?

Anil K Verma, Sara Quattrini, Yeliz Serin, Chiara Monachesi, Giulia N Catassi, Simona Gatti, Govind K Makharia, Elena Lionetti, Carlo Catassi

Abstract read
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In one paragraph

Article in Digestive diseases and sciences, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Use of technology to educate patients with celiac disease.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2025
    Review
  3. Gluten Contamination of Rice: Analytical TestingFood technology and biotechnology
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Anil K VermaDepartment of Medicine Farncombe, Family Digestive Health Research Institute, McMaster University, Hamilton, ON, Canada. anilkrvermaa@gmail.com.ORCID http://orcid.org/0000-0002-1507-6417
Sara QuattriniDivision of Pediatrics, DISCO Department, Polytechnic University of Marche, Ancona, Italy.
Yeliz SerinDepartment of Nutrition and Dietetics, Faculty of Health Science, Çukurova University, Adana, Turkey.
Chiara MonachesiDepartment of Medicine Farncombe, Family Digestive Health Research Institute, McMaster University, Hamilton, ON, Canada.
Giulia N CatassiDivision of Pediatrics, DISCO Department, Polytechnic University of Marche, Ancona, Italy.
Simona GattiDivision of Pediatrics, DISCO Department, Polytechnic University of Marche, Ancona, Italy.
Govind K MakhariaDepartment of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, 110029, India.
Elena LionettiDivision of Pediatrics, DISCO Department, Polytechnic University of Marche, Ancona, Italy.
Carlo CatassiDivision of Pediatrics, DISCO Department, Polytechnic University of Marche, Ancona, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFacebook (FB) is the most popular online networking platform. Many celiac disease Facebook (CD-FB) pages spread awareness about celiac disease (CD). To get the latest information, patients with CD frequently follow such pages. However, little is known about whether such pages provide authentic and reliable information.

aimsThis study aims to investigate whether CD-FB pages spread misleading information to patients with CD.

methodsOn the Facebook social networking platform, CD-FB pages created in three celiac-prevalent countries (Italy, the USA, and India) were explored using different combinations of keywords. The type/category of the CD-FB page, country of origin, purpose, page web link, and number of followers/members were documented in a Microsoft spreadsheet. All posts distributed on selected CD-FB pages in the last 3 years were thoroughly screened.

resultsFrom August 2022 to March 2023, a total of 200 CD-FB pages from Italy, the USA, and India were explored. Out of these 200 pages, 155 CD-FB (Italy 70; the USA 46; India 39) were found eligible. Of them, 20 (13%) CD-FB pages (Italy 4; the USA 5; India 11) shared misleading information about CD. Surprisingly, 11 (8%) of these 20 pages (Italy 0; the USA 2; India 9) supported alternative treatment options for CD.

conclusionsCD-FB pages are useful for disseminating celiac-disease-related information. While most such pages provide useful information, 13% of CD-FB pages allow misleading information. Patients with CD should consult their treating unit before following any uncertain information posted on CD-FB pages.

Indexed as

Celiac DiseaseHumansIndiaItalyPatient Education as TopicSocial MediaSocial NetworkingUnited StatesAlternative treatmentCeliac diseaseFacebookGluten-free dietGluten-free ingredientsMisleading information

Identifiers

PMID38816597

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.