Trial reportNursing in critical care2024
Perceived family-centered care and post-traumatic stress in parents of infants cared for in the paediatric cardiac intensive care unit.
Trial report in Nursing in critical care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Bridging Parental Perceptions and Experiences of Family-Centered Care in the Pediatric Intensive Care Unit: A Mixed-Methods Study.Journal of clinical nursing · 2026Article
- Skin-to-skin contact significantly impacts maternal anxiety, mother-infant bonding, and autonomic function in infants with congenital heart disease and their mothers.Scientific reports · 2026Article
- Implementation of family-centered care in Pediatric Gastroscopy.Pakistan journal of medical sciences · 2026Article
- Embedding Compassion and Communication Frameworks in Pediatric Cardiology.Pediatric cardiology · 2026Review
- Indicators of physical and emotional health in infants during hospitalization in paediatric cardiac intensive care units.Frontiers in cardiovascular medicine · 2026Article
- Prevalence of Depression and Anxiety Symptoms Among Parents of Hospitalized Children in 14 Countries.Children (Basel, Switzerland) · 2025Article
- Psychosocial functioning in children with a congenital heart disease: attachment and emotion regulation strategies of children and parents as explanatory factors.Frontiers in cardiovascular medicine · 2025Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundFamily-centred care (FCC), while a core value of paediatric hospitals, has not been well-studied in the paediatric cardiac intensive care unit (PCICU).
aimTo describe parents' perceptions of FCC provided by nurses in the PCICU during their infant's recovery from neonatal cardiac surgery and explore associations of perceptions of FCC on parent post-traumatic stress (PTS) 4 months post-discharge. STUDY
designData obtained from a previously conducted randomized clinical trial (RCT) on telehealth home monitoring after neonatal cardiac surgery at three free-standing paediatric hospitals were analysed from a subset of 164 parents who completed the FCC Scale at hospital discharge, which measures a parent's experience of nursing care that embodies core principles of FCC. The RCT intervention was provided after hospital discharge, having no influence on parent's perception of FCC. The intervention also had no effect on PTS.
resultsPerceived FCC was lowest for items 'nurses helped me feel welcomed' and 'nurses helped me feel important in my child's care'. Having 12%-19% points lower perception of FCC at hospital discharge was associated with parent experience of six or more PTS symptoms, at least moderate PTS symptom severity, or PTS disorder diagnosis at 4-month follow-up. Every 10% increase in parental perceptions of FCC was associated with less PTS symptoms (β = -0.29, SE = 0.12; p = .02) and lower PTS symptom cluster scores of arousal (β = -0.18, SE = 0.08; p = .02).
conclusionsParents who perceived lower FCC during their infants' hospitalization were at increased risk for the development of PTS symptoms, more PTS symptom severity and PTS disorder diagnosis 4-months post-discharge. RELEVANCE TO CLINICAL PRACTICE: Nurses have a prominent role to support the implementation of FCC for infants with cardiac defects and their parents. FCC may positively influence overall parent mental health and well-being, reducing the trauma and distress of the PCICU experience.
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