ArticlePLOS global public health2024
WHO framework on meaningful engagement: A transformational approach to integrate lived experience in the noncommunicable disease and mental health agenda.
Article in PLOS global public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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The trial behind it
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Who cites it
20 citing papers in PubMed.
- Co-designing engagement principles for involving children and young people in palliative care research in low- and middle-income settings.Research involvement and engagement · 2026Article
- Integrating meaningful involvement of people living with non-communicable diseases in India's National NCD Programme: lessons learnt and opportunities for global, regional and national contextualisation and adoption.BMJ global health · 2026Article
- The present and future of blended care: current research and introduction to the B-FIT framework.NPJ digital medicine · 2026Review
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- Article
- Integrating noncommunicable disease care in a public primary health care facility in North Lebanon: A qualitative study of implementation in a humanitarian crisis.PLOS global public health · 2026Article
- Developing the Community Paramedicine Needs Assessment Tool.Nursing reports (Pavia, Italy) · 2025Article
- Students in global traumatic stress research: an opportunity for meaningful and equitable involvement.European journal of psychotraumatology · 2025Article
- Partners, coordinators and high-level leaders' perspectives on a consumer and community involvement program in Australia: a qualitative evaluation using template analysis.BMC health services research · 2025Article
- Improving the reporting on health equity in observational research (STROBE-Equity): extension checklist and elaboration.BMJ (Clinical research ed.) · 2025Article
- Mediators of the Association Between Severity of Noncommunicable Diseases and Subjective Health-Related Quality of Life.Neuropsychopharmacology reports · 2025Article
- Promoting meaningful participation of individuals with lived experience of mental health conditions in China.The Lancet regional health. Western Pacific · 2025Article
- Lived experience: from intention to global action.BMJ (Clinical research ed.) · 2025Article
- Meaningful engagement with people with lived experience: challenging, messy, and more vital than ever.BMJ (Clinical research ed.) · 2025Article
- Equalising power imbalances or a trail of broken promises? A qualitative study on engaging people with diverse lived experience of marginalisation in food policymaking in Australia.BMC public health · 2025Article
- A Seat at the Table, But on Whose Terms? The Illusion of Meaningful Engagement.Journal of patient experience · 2025Article
- People with lived experience of chronic conditions are key epistemic authorities in global health.PLOS global public health · 2025Article
- Lived experience in mental health research in Ghana and Indonesia: What have we learned?PLOS mental health · 2025Article
- Embracing the complexity of lived experiences in psychiatry research: Reflexivity, cultural sensitivity, and emergent design.World journal of psychiatry · 2024Article
- Methodological and reporting recommendations for clinical trials in Nutritional Psychiatry: Guidelines from the International Society for Nutritional Psychiatry Research.The British journal of nutrition · 2024Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
As the global public health community continues to reflect and recover from the COVID-19 pandemic, noncommunicable diseases (NCDs), and mental health and neurological conditions remains one of the largest unmet gaps in progress towards meeting the Sustainable Development Goals (SDG). People living with these health conditions, particularly among those most marginalized, acutely understand the impact of these failures in global action and investment. Integrating lived experience into the NCD and mental health response can act as an accelerator for action. Through a participatory process to co-create the WHO Framework on Meaningful Engagement on NCDs, and Mental Health and Neurological Conditions, we conducted a mixed methods and semi-structured approach, including informal consultations, focus groups, in-depth interviews, online surveys, and a short film series, that captured the perspectives of 700 individuals from 111 countries, including 386 individuals with lived experience. Working alongside lived experience communities and other relevant stakeholders, we have established and co-created a set of principles, enablers and actions for operationalizing meaningful engagement, related to dignity and respect, power and equity, inclusivity and intersectionality, commitment and transparency, and institutionalization and contextualization. People with lived experience have a right to be equitably included in all levels of policy-setting, design and implementation of programs, and to have a central role in reforming and reorienting the structures and systems intended to address the complex multifactorial challenges that they face. WHO is committed to leveraging its role in global health to further operationalize meaningful engagement within WHO and its Member States.
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Registered trials
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