Evidence map›Paper›PMID 38809473›Full record

ArticleJournal of autism and developmental disorders2025

Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives.

Emily Spackman, Alicia Geng, Luke D Smillie, Thomas W Frazier, Antonio Y Hardan, Gail A Alvarez, Andrew Whitehouse, Rachel K Schuck, Sue R Leekam, Mirko Uljarević

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Emily SpackmanMelbourne School of Psychological Sciences, University of Melbourne, Melbourne, Australia. espack@stanford.edu.ORCID http://orcid.org/0000-0003-2300-439X
Alicia GengChild & Adolescent Psychiatry and Child Development, Stanford University, Stanford, CA, USA.
Luke D SmillieMelbourne School of Psychological Sciences, University of Melbourne, Melbourne, Australia.
Thomas W FrazierDepartment of Psychology, John Carroll University, University Heights, OH, USA.
Antonio Y HardanChild & Adolescent Psychiatry and Child Development, Stanford University, Stanford, CA, USA.
Gail A AlvarezCliniKids, Telethon Kids Institute, Perth, Australia.
Andrew WhitehouseCliniKids, Telethon Kids Institute, Perth, Australia.
Rachel K SchuckSan Diego State University, San Diego, CA, USA.
Sue R LeekamSchool of Psychology, Cardiff University, Cardiff, UK.
Mirko UljarevićChild & Adolescent Psychiatry and Child Development, Stanford University, Stanford, CA, USA.

Funding

A Big Data Approach Toward the Development of a New Quantitative Measure of Restricted and Repetitive BehaviorsR21MH121876 · NIMH · STANFORD UNIVERSITY · PI HARDAN, ANTONIO, JO, BOOIL · 2020 to 2021
$434k
NIMH NIH HHS R21MH121876-01
6 · The paper itself

Abstract

Manifestations of insistence on sameness (IS) and circumscribed interests (CI) are complex, with individuals varying considerably, not only in the types of behaviours they express, but also in terms of a behaviour's frequency, intensity, trajectory, adaptive benefits, and impacts. However, current quantitative RRB instruments capture only certain aspects of these behaviours (e.g., mostly frequency or general "severity"). Thus, the current study utilised a semi-structured caregiver interview to provide an in-depth, qualitative characterization of different aspects of IS and CI presentation. Caregivers of 27 autistic children and adolescents displaying IS and/or CI behaviours (3-16 years; 18 males; 9 females) participated in a semi-structured interview. Responses were analysed using thematic framework analysis. Framework analysis identified nine different aspects of IS and CI presentation: (1) intensity, (2) frequency, (3) emergence of behaviour, (4) changes over time, (5) day-to-day fluctuations, (6) purpose/adaptive benefit, (7) experiences of distress, (8) challenges for the individual, their family, and their socialisation, and (9) management strategies and their effectiveness. Autistic children and adolescents were reported to vary greatly on each of these dimensions. Findings demonstrate the complexity of IS and CI presentations and highlight the need for more comprehensive quantitative assessments that independently assess the frequency, intensity, and impact of behaviours. Further, findings reported here emphasize the need for ecologically valid measures that assess the contexts in which these behaviours occur and how their presentations can change within and across days.

Indexed as

Autism Spectrum DisorderAutistic DisorderParentsAdolescentCaregiversChildChild, PreschoolFemaleHumansMaleQualitative ResearchCircumscribed interestsInsistence on samenessInterviewQualitativeRestricted and repetitive behaviorSpecial interests

Identifiers

PMID38809473

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.