Evidence map›Paper›PMID 38804591›Full record

ArticleAutism research : official journal of the International Society for Autism Research2024

Unpacking the prevalence: A warning against overstating the recently narrowed gap for Black autistic youth.

Danai Kasambira Fannin, Ed-Dee G Williams, Marcus Fuller, Jamie N Pearson, Brian A Boyd, Elizabeth R Drame, Jonte' Taylor, Aisha S Dickerson, Adiaha Spinks-Franklin, D' Jaris Coles-White

Abstract read
In one paragraph

Article in Autism research : official journal of the International Society for Autism Research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. The Critical Need for Research Examining Mental Health Risk and Protective Factors in Black Autistic Youth.Journal of the American Academy of Child and Adolescent Psychiatry · 2026
    Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Comparative Analysis of Autistic Women Across the Lifespan: Childhood vs. Adulthood Diagnosis.Autism research : official journal of the International Society for Autism Research · 2025
    Article
  8. Introduction to the Forum: Intersectional Approaches to Language in Autism.Perspectives of the ASHA special interest groups · 2025
    Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Danai Kasambira FanninDepartment of Communication Sciences and Disorders, North Carolina Central University, Durham, North Carolina, USA.ORCID 0000-0003-4267-1956
Ed-Dee G WilliamsSchool of Social Work, Boston College, Chestnut Hill, Massachusetts, USA.
Marcus FullerDepartment of Education, University of Maryland Eastern Shore, Princess Anne, Maryland, USA.
Jamie N PearsonDepartment of Teacher Education and Learning Sciences, North Carolina State University, Raleigh, North Carolina, USA.
Brian A BoydSchool of Education, University of North Carolina, Chapel Hill, North Carolina, USA.
Elizabeth R DrameDepartment of Teaching and Learning, University of Wisconsin, Milwaukee, Wisconsin, USA.
Jonte' TaylorDepartment of Educational Psychology, Counseling, and Special Education, Penn State University, University Park, Pennsylvania, USA.
Aisha S DickersonDepartment of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.ORCID 0000-0003-3929-9540
Adiaha Spinks-FranklinDepartment of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.
D' Jaris Coles-WhiteDepartment of Speech, Language, Hearing Science, Western Michigan University, Kalamazoo, Michigan, USA.ORCID 0000-0002-3615-2298

Funding

Parental lifetime occupational exposures and risk of autism spectrum disorder in offspringK01ES032046 · NIEHS · JOHNS HOPKINS UNIVERSITY · PI DICKERSON, AISHA S. · 2020 to 2022
$486k
AHRQ HHS K08 HS029692NIEHS NIH HHS K01 ES032046
6 · The paper itself

Abstract

Recent findings from the Centers for Disease Control and Prevention's (CDC) Autism and Developmental Disabilities Monitoring (ADDM) Network's 2020 prevalence report indicate that disparities in autism diagnoses between Black and White youth have narrowed, reflecting improved screening, awareness, and access to services (Maenner et al., 2023. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 72, 1-14.). Claims of reducing disparities beyond prevalence rates, however, are not fully supported, as indicated by the reality that Black youth whose screenings indicate autistic traits are still not being referred for full evaluation or early intervention services at the same rate as their White peers (Major et al., 2020. Autism, 24, 1629-1638; Smith et al., 2020. Pediatrics, 145, S35-S46.). Black 8-year-olds identified as autistic still experience disparate educational placements (Waitoller et al., 2010. The Journal of Special Education. 44, 29-49.) where services may not be autism-specific or have Individual Education Plan goals only focused on "behavior problems" (Severini et al., 2018. Journal of Autism and Developmental Disorders, 48, 3261-3272.), are served in the most restrictive environments (Skiba et al., 2006. Exceptional Children, 72, 411-424.) and lack consistent augmentative and alternative communication support (Pope et al., 2022. American Journal of Speech-Language Pathology, 31, 2159-2174.). Additionally, ADMM researchers report consistent disparities in the identification of co-occurring intellectual disability where Black autistic children have significantly more co-occurrences than White autistic children. The purpose of this commentary is to first examine the assertion that the narrowed gap indicates, "…improved…access to services among historically underserved groups," (p. 9) (Maenner et al., 2023. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 72, 1-14.). We will then recommend strategies to address the ongoing disparities.

Indexed as

Autistic DisorderBlack or African AmericanAdolescentAutism Spectrum DisorderChildFemaleHealthcare DisparitiesHealth Status DisparitiesHumansMalePrevalenceUnited StatesAfrican AmericanautismBlackCDCdisparitiesidentificationschool services

Identifiers

PMID38804591
PMCPMC11186720

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.