Evidence map›Paper›PMID 38802942›Full record

ArticleHealth research policy and systems2024

Enhancing the delivery of comprehensive care for people living with HIV in Canada: insights from citizen panels and a national stakeholder dialogue.

Michael G Wilson, Cristina Mattison, Kerry Waddell, Jean Bacon, Marissa Becker, Christine Bibeau, John N Lavis, Ron Rosenes, Claire E Kendall

Abstract read
In one paragraph

Article in Health research policy and systems, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Michael G WilsonMcMaster Health Forum, McMaster University, 1280 Main Street West, MML-417, Hamilton, ON, L8S 4L6, Canada. wilsom2@mcmaster.ca.ORCID http://orcid.org/0000-0002-5383-2471
Cristina MattisonWomen's and Children's Health, Karolinska Institut, Stockholm, Sweden.
Kerry WaddellMcMaster Health Forum, McMaster University, 1280 Main Street West, MML-417, Hamilton, ON, L8S 4L6, Canada.
Jean BaconOntario HIV Treatment Network, Toronto, Canada.
Marissa BeckerDepartments of Medicine, Medical Microbiology, and Community Health Sciences, University of Manitoba, Winnipeg, Canada.
Christine BibeauC.T. Lamont Primary Health Care Research Centre, Bruyère Research Institute, Ottawa, Canada.
John N LavisMcMaster Health Forum, McMaster University, 1280 Main Street West, MML-417, Hamilton, ON, L8S 4L6, Canada.
Ron RosenesC.T. Lamont Primary Health Care Research Centre, Bruyère Research Institute, Ottawa, Canada.
Claire E KendallC.T. Lamont Primary Health Care Research Centre, Bruyère Research Institute, Ottawa, Canada.

Funding

CIHR PEG-157060CIHR TT5-128270
6 · The paper itself

Abstract

backgroundPeople living with human immunodeficiency virus (HIV) are living longer with health-related disability associated with ageing, including complex conditions. However, health systems in Canada have not adapted to meet these comprehensive care needs.

methodsWe convened three citizen panels and a national stakeholder dialogue. The panels were informed by a plain-language citizen brief that outlined data and evidence about the challenge/problem, elements of an approach for addressing it and implementation considerations. The national dialogue was informed by a more detailed version of the same brief that included a thematic analysis of the findings from the panels.

resultsThe 31 citizen panel participants emphasized the need for more prevention, testing and social supports, increased public education to address stigma and access to more timely data to inform system changes. The 21 system leaders emphasized the need to enhance person-centred care and for implementing learning and improvement across provinces, territories and Indigenous communities. Citizens and system leaders highlighted that policy actions need to acknowledge that HIV remains unique among conditions faced by Canadians.

conclusionsAction will require a national learning collaborative to support spread and scale of successful prevention, care and support initiatives. Such a collaborative should be grounded in a rapid-learning and improvement approach that is anchored on the needs, perspectives and aspirations of people living with HIV; driven by timely data and evidence; supported by appropriate decision supports and aligned governance, financial and delivery arrangements; and enabled with a culture of and competencies for rapid learning and improvement.

Indexed as

Comprehensive Health CareHIV InfectionsSocial StigmaStakeholder ParticipationCanadaCommunity ParticipationDelivery of Health CareFemaleHealth PolicyHealth Services AccessibilityHealth Services Needs and DemandHumansMalePatient-Centered CareSocial SupportCitizen engagementComprehensive careHIVPrimary careStakeholder dialogue

Identifiers

PMID38802942
PMCPMC11129410

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.