Evidence map›Paper›PMID 38802098›Full record

ArticleIntellectual and developmental disabilities2024

A Research Agenda to Support Families of People With Intellectual and Developmental Disabilities With Intersectional Identities.

Lynda Lahti-Anderson, Yoshiko Kardell, Sarah Hall, Sandra Magaña, Michelle Reynolds, Jeanette Córdova

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Intellectual and developmental disabilities, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lynda Lahti-AndersonLynda Lahti-Anderson, University of Minnesota; Yoshiko Kardell, Human Services Research Institute; Sarah Hall, University of Minnesota; Sandra Magaña, University of Texas at Austin; Michelle Reynolds, University of Missouri-Kansas City; and Jeanette Córdova, Association of University Centers on Disabilities.
Yoshiko KardellLynda Lahti-Anderson, University of Minnesota; Yoshiko Kardell, Human Services Research Institute; Sarah Hall, University of Minnesota; Sandra Magaña, University of Texas at Austin; Michelle Reynolds, University of Missouri-Kansas City; and Jeanette Córdova, Association of University Centers on Disabilities.
Sarah HallLynda Lahti-Anderson, University of Minnesota; Yoshiko Kardell, Human Services Research Institute; Sarah Hall, University of Minnesota; Sandra Magaña, University of Texas at Austin; Michelle Reynolds, University of Missouri-Kansas City; and Jeanette Córdova, Association of University Centers on Disabilities.
Sandra MagañaLynda Lahti-Anderson, University of Minnesota; Yoshiko Kardell, Human Services Research Institute; Sarah Hall, University of Minnesota; Sandra Magaña, University of Texas at Austin; Michelle Reynolds, University of Missouri-Kansas City; and Jeanette Córdova, Association of University Centers on Disabilities.
Michelle ReynoldsLynda Lahti-Anderson, University of Minnesota; Yoshiko Kardell, Human Services Research Institute; Sarah Hall, University of Minnesota; Sandra Magaña, University of Texas at Austin; Michelle Reynolds, University of Missouri-Kansas City; and Jeanette Córdova, Association of University Centers on Disabilities.
Jeanette CórdovaLynda Lahti-Anderson, University of Minnesota; Yoshiko Kardell, Human Services Research Institute; Sarah Hall, University of Minnesota; Sandra Magaña, University of Texas at Austin; Michelle Reynolds, University of Missouri-Kansas City; and Jeanette Córdova, Association of University Centers on Disabilities.

Funding

ACL HHS 90RTCP0003U.S. Department of Health and Human Services (HHS) 90DDUC0070
6 · The paper itself

Abstract

Family members provide significant practical and emotional support to people with intellectual and developmental disabilities (IDD) across the lifespan. In September 2022, the State of the Science Conference on Community Living: Engaging Persons With Intellectual and Developmental Disabilities From Underserved Racial, Ethnic, Linguistic, and Cultural Groups in Research was held. This article summarizes the efforts of the workgroup that developed research goals related to supporting families of people with IDD. The focus was on families with intersectional identities and minoritized communities. Recommended areas of future research include exploratory research to better understand the experiences of these families, perspectives of families with intersectional identities about the formal support system, funding for family support and services, and inclusive research strategies.

Indexed as

Developmental DisabilitiesFamilyIntellectual DisabilityHumansResearchSocial Supportfamily supportintellectual and developmental disabilitiesintersectionalityminoritized communities

Identifiers

PMID38802098
PMCPMC11286222

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.