Evidence map›Paper›PMID 38796814›Full record

ArticleSpine deformity2024

A multicenter evaluation of the time and travel burden on families with children treated for early-onset scoliosis.

Ryan J McFadden, Lucas Hauth, Mathew Gregoski, Jason B Anari, Jaysson T Brooks, Jeffrey R Sawyer, Maxwell Marshall, Pediatric Spine Study Group, Robert F Murphy

Abstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Spine deformity, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Ryan J McFaddenDepartment of Orthopaedics and Physical Medicine, Medical University of South Carolina, 96 Jonathan Lucas Street, MSC 708, Charleston, SC, 29425, USA.
Lucas HauthDivision of Orthopaedics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Mathew GregoskiDepartment of Orthopaedics and Physical Medicine, Medical University of South Carolina, 96 Jonathan Lucas Street, MSC 708, Charleston, SC, 29425, USA.
Jason B AnariDivision of Orthopaedics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Jaysson T BrooksDepartment of Orthopaedics, Scottish Rite for Children, Dallas, TX, USA.
Jeffrey R SawyerCampbell Clinic Orthopaedics, Memphis, TN, USA.
Maxwell MarshallDepartment of Orthopaedics and Physical Medicine, Medical University of South Carolina, 96 Jonathan Lucas Street, MSC 708, Charleston, SC, 29425, USA.
Pediatric Spine Study Group
Robert F MurphyDepartment of Orthopaedics and Physical Medicine, Medical University of South Carolina, 96 Jonathan Lucas Street, MSC 708, Charleston, SC, 29425, USA. murphyr@musc.edu.ORCID 0000-0002-4710-9180

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposePatients who undergo growth-friendly (GF) treatment for early-onset scoliosis (EOS) undergo multiple clinical and surgical encounters. We sought to quantify the associated temporal and travel burden and estimate subsequent cost.

methodsFour centers in an international study group combined data on EOS patients who underwent surgical GF treatment from 2006 to 2021. Data collected included demographics, scoliosis etiology, GF implant, encounter type, and driving distance. We applied 2022 IRS and BLS data or $0.625/mile and $208.2/day off work to calculate a relative financial burden.

resultsA total of 300 patients were analyzed (55% female). Etiologies were: congenital (33.3%), idiopathic (18.7%), neuromuscular (30.7%), and syndromic (17.3%). The average age at the index procedure was 5.5 years. For the 300 patients, 5899 encounters were recorded (average 18 encounters/patient). Aggregate encounter types were 2521 clinical office encounters (43%), 2045 surgical lengthening encounters (35%), 1157 magnetic lengthening encounters (20%), 149 spinal fusions (3%), and 27 spinal fusion revisions (0.5%). When comparing patients by scoliosis etiology or by GF implant type, no significant differences were noted in the total number of encounters or average travel distance. Patients traveled a median round trip distance of 158 miles/encounter between their homes and treating institutions (range 2.4-5654 miles), with a cumulative median distance of 2651 miles for the entirety of their treatment (range 29-90,552 miles), at an estimated median cost of $1656.63. The mean number of days off work was 18 (range 3-75), with an associated loss of $3643.50 in income.

conclusionPatients with EOS averaged 18 encounters for GF surgical treatment. These patients and their families traveled a median distance of 158 miles/encounter, with an estimated combined mileage and loss of income of $5300.

Indexed as

Cost of IllnessScoliosisAge of OnsetChildChild, PreschoolFemaleHumansMaleSpinal FusionTime FactorsTravelEarly-onset scoliosisFinancial burdenGrowth friendly treatmentScoliosisTravel burden

Identifiers

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.