Evidence map›Paper›PMID 38785500›Full record

ArticleCurrent oncology (Toronto, Ont.)2024

Establishing the Top 10 Research Priorities for Adolescent and Young Adult (AYA) Cancer in Canada: A Protocol for a James Lind Alliance Priority Setting Partnership.

Perri R Tutelman, Chantale Thurston, Tamara Rader, Brianna Henry, Tristyn Ranger, Mohamed Abdelaal, Michelle Blue, Timothy W Buckland, Stefanie Del Gobbo, Lexy Dobson and 17 more

Abstract read
In one paragraph

Article in Current oncology (Toronto, Ont.), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

Perri R TutelmanDepartment of Oncology, University of Calgary, Calgary, AB T2N 1N4, Canada.
Chantale ThurstonPatient Partner, Canada.
Tamara RaderJames Lind Alliance, Southampton SO16 7NS, UK.
Brianna HenryDepartment of Oncology, University of Calgary, Calgary, AB T2N 1N4, Canada.
Tristyn RangerDepartment of Oncology, University of Calgary, Calgary, AB T2N 1N4, Canada.
Mohamed AbdelaalDepartment of Medicine, University of Ottawa, Ottawa, ON K1H 8M5, Canada.ORCID 0000-0002-4751-4186
Michelle BlueCross Cancer Institute, Edmonton, AB T6G 1Z2, Canada.
Timothy W BucklandPatient Partner, Canada.
Stefanie Del GobboBC Cancer Centre, Vancouver, BC V5Z 4E6, Canada.
Lexy DobsonPatient Partner, Canada.
Emily GallantPatient Partner, Canada.
Cheryl HeykoopPatient Partner, Canada.
Mackenzie JansenCancerCare Manitoba, Winnipeg, MB R3E 0V9, Canada.
Lorna LarsenPatient Partner, Canada.
Nicole MasejaPatient Partner, Canada.
Sapna OberoiCancerCare Manitoba, Winnipeg, MB R3E 0V9, Canada.ORCID 0000-0002-6071-0042
Vinesha RamasamyPatient Partner, Canada.
Marlie SmithPrincess Margaret Cancer Centre, Toronto, ON M5G 2C4, Canada.
Evan TaylorSchool of Social Work and Human Services, University of the Fraser Valley, Abbotsford, BC V2S 7M8, Canada.ORCID 0000-0002-9207-647X
Nadia WendowskyPatient Partner, Canada.
Sara BeattieDepartment of Oncology, University of Calgary, Calgary, AB T2N 1N4, Canada.
Jacqueline BenderPrincess Margaret Cancer Centre, Toronto, ON M5G 2C4, Canada.ORCID 0000-0003-1501-335X
Kathryn A BirnieDepartment of Anesthesiology, Perioperative and Pain Medicine, University of Calgary, Calgary, AB T2N 1N4, Canada.ORCID 0000-0002-8223-8834
Sheila N GarlandDepartment of Psychology, Memorial University, St. John's, NL A1C 5S7, Canada.ORCID 0000-0002-6119-318X
Lindsay JibbLawrence Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON M5R 0A3, Canada.ORCID 0000-0001-6995-2825
Melanie NoelDepartment of Psychology, University of Calgary, Calgary, AB T2N 1N4, Canada.
Fiona S M SchulteDepartment of Oncology, University of Calgary, Calgary, AB T2N 1N4, Canada.ORCID 0000-0002-3076-9676

Funding

CIHR 498808
6 · The paper itself

Abstract

Adolescents and young adults (AYAs; 15-39 years) diagnosed with cancer have unique medical and psychosocial needs. These needs could be better addressed through research that is focused on the topics that matter most to them. However, there is currently no patient-oriented research agenda for AYA cancer in Canada. This manuscript describes the early development and project protocol for a priority-setting partnership (PSP) for establishing the top 10 research priorities for AYA cancer in Canada. This project follows the PSP methodology outlined by the James Lind Alliance (JLA) to engage patients, caregivers, and clinicians in research prioritization. The steps of a JLA PSP include establishing a steering group and project partners, gathering uncertainties, data processing and verifying uncertainties, interim priority setting, and a final priority setting workshop. The AYA cancer PSP will result in a top 10 list of research priorities identified by Canadian AYA patients, caregivers, and clinicians that will be published and shared broadly with the research community. The first steering group meeting was held in April 2023, and the project is ongoing. The establishment of a patient-oriented research agenda for AYA cancer will catalyze a long-term and impactful research focus and ultimately improve outcomes for AYA patients with cancer in Canada.

Indexed as

NeoplasmsAdolescentAdultBiomedical ResearchCanadaFemaleHealth PrioritiesHumansMaleResearchYoung Adultadolescent and young adultAYAcancerJames Lind Alliancepatient involvementpriority-setting partnershipresearch priorities

Identifiers

PMID38785500
PMCPMC11120587

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.