Evidence map›Paper›PMID 38778297›Full record

ArticleBMC palliative care2024

"When I do have some time, rather than spend it polishing silver, I want to spend it with my grandkids": a qualitative exploration of patient values following left ventricular assist device implantation.

Avery C Bechthold, Colleen K McIlvennan, Daniel D Matlock, Deborah B Ejem, Rachel D Wells, Jesse LeJeune, Marie A Bakitas, J Nicholas Odom

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Avery C BechtholdSchool of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA. abechth@uab.edu.ORCID https://orcid.org/0000-0002-6542-1346
Colleen K McIlvennanDivision of Cardiology, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.ORCID https://orcid.org/0000-0003-2131-9910
Daniel D MatlockAdult and Child Consortium for Health Outcomes Research and Delivery Science, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.ORCID https://orcid.org/0000-0001-9597-9642
Deborah B EjemSchool of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA.ORCID https://orcid.org/0000-0003-4617-2433
Rachel D WellsSchool of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA.ORCID https://orcid.org/0000-0003-4447-012X
Jesse LeJeuneCardiology Clinic, UAB Hospital, Birmingham, AL, USA.
Marie A BakitasSchool of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA.ORCID https://orcid.org/0000-0002-2913-2053
J Nicholas OdomSchool of Nursing, University of Alabama at Birmingham, 1720 2nd Avenue South NB 350, Birmingham, AL, 35294, USA.ORCID https://orcid.org/0000-0001-6764-0254

Funding

Developing, Demonstrating, and Disseminating Innovative Programs to Achieve Translational SuccessUL1TR001866 · NCATS · ROCKEFELLER UNIVERSITY · PI COLLER, BARRY, KRUEGER, JAMES G · 2016 to 2025
$40.6M
NCATS NIH HHS UL1 TR001866
6 · The paper itself

Abstract

backgroundValues are broadly understood to have implications for how individuals make decisions and cope with serious illness stressors, yet it remains uncertain how patients and their family and friend caregivers discuss, reflect upon, and act on their values in the post-left ventricular assist device (LVAD) implantation context. This study aimed to explore the values elicitation experiences of patients with an LVAD in the post-implantation period.

methodsQualitative descriptive study of LVAD recipients. Socio-demographics and patient resource use were analyzed using descriptive statistics and semi-structured interview data using thematic analysis. Adult (> 18 years) patients with an LVAD receiving care at an outpatient clinic in the Southeastern United States.

resultsInterviewed patients (n = 27) were 30-76 years, 59% male, 67% non-Hispanic Black, 70% married/living with a partner, and 70% urban-dwelling. Three broad themes of patient values elicitation experiences emerged: 1) LVAD implantation prompts deep reflection about life and what is important, 2) patient values are communicated in various circumstances to convey personal goals and priorities to caregivers and clinicians, and 3) patients leverage their values for strength and guidance in navigating life post-LVAD implantation. LVAD implantation was an impactful experience often leading to reevaluation of patients' values; these values became instrumental to making health decisions and coping with stressors during the post-LVAD implantation period. Patient values arose within broad, informal exchanges and focused, decision-making conversations with their caregiver and the healthcare team.

conclusionsClinicians should consider assessing the values of patients post-implantation to facilitate shared understanding of their goals/priorities and identify potential changes in their coping.

Indexed as

Heart-Assist DevicesQualitative ResearchAdaptation, PsychologicalAdultAgedFemaleHumansMaleMiddle AgedBeliefsCommunicationGoalsPatient-centered careQualitative researchSelf-care, valuesShared decision-makingVentricular assist devices

Identifiers

PMID38778297
PMCPMC11110360

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.