Evidence map›Paper›PMID 38776029›Full record

Trial reportInternational ophthalmology2024

Living with an artificial eye: qualitative insights into patient and family member experiences.

Florien W Boele, Jessica Charlotte Kawalek, Emma Nicklin, Taras Gout, Judith M Watson, PERSONAL-EYE-S Study Group

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in International ophthalmology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Florien W Boele *Leeds Institute of Medical Research at St James's, St James's University Hospital, University of Leeds, Leeds, LS9 7TF, UK. F.Boele@leeds.ac.uk.ORCID https://orcid.org/0000-0003-0409-7949
Jessica Charlotte Kawalek *Leeds Institute of Medical Research at St James's, St James's University Hospital, University of Leeds, Leeds, LS9 7TF, UK.ORCID https://orcid.org/0000-0001-8678-9804
Emma NicklinLeeds Institute of Medical Research at St James's, St James's University Hospital, University of Leeds, Leeds, LS9 7TF, UK.ORCID https://orcid.org/0000-0002-6683-8098
Taras GoutDepartment of Ophthalmology, St James's University Teaching Hospital, Beckett St., Leeds, LS9 7TF, UK.ORCID https://orcid.org/0000-0001-9428-2245
Judith M WatsonYork Trials Unit, Department of Health Sciences, University of York, York, YO10 5DD, UK.ORCID https://orcid.org/0000-0003-0694-3854
PERSONAL-EYE-S Study Group

Funding

NIHR NIHR201559
6 · The paper itself

Abstract

purposeArtificial eye users (AEUs) can experience a negative impact on psychological and emotional wellbeing, including reduced social functioning, which may be a consequence of living with one eye removed, and/or of having a prosthetic eye. This may have wider consequences for their families. We aimed to explore what it means to live with a prosthetic eye, for both AEUs and their families-and how any quality of life (QoL) issues impact on their day-to-day functioning.

methodsA subset of AEUs and their family members taking part in a feasibility randomised controlled trial comparing hand-painted to digitally printed artificial eyes were invited for semi-structured interviews. Transcripts were analysed using reflexive thematic analysis. Qualitative results related to trial participation are covered elsewhere. Here, we focus on QoL and day-to-day functioning.

resultsTwelve AEUs (eight males) and five spouses (one male) who had worn artificial eyes for 2-65 years took part, and four themes were identified. (1) Impact on day-to-day life: AEUs and their spouses have to adapt to (partial) sight loss, reduced levels of confidence, and social withdrawal. (2) Impact on psychological and emotional wellbeing: distress among AEUs and their spouses can be severe and prolonged, highlight unmet support needs. (3) Challenges with treatment experiences: AEUs experienced negative impact of fragmentation of care and long waiting times. (4) Worries about the future: AEUs mentioned fragility of remaining sight, and concerns around potential need for further treatment.

conclusionPatients and their family members experience negative impact of being an AEU on their everyday lives and quality of life. There is a potential role for psychosocial support services in supporting AEUs and their families even long after eye loss.

Indexed as

Eye, ArtificialQuality of LifeAdultAgedBlindnessFamilyFemaleHumansMaleMiddle AgedQualitative ResearchEye, ArtificialInterviewsOcular prosthesisQuality-of-lifeReflexive thematic analysis

Identifiers

PMID38776029
PMCPMC11111535

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.