Evidence map›Paper›PMID 38774369›Full record

ReviewEuropean heart journal. Digital health2024

Risks and benefits of sharing patient information on social media: a digital dilemma.

Robert M A van der Boon, A John Camm, C Aguiar, E Biasin, G Breithardt, H Bueno, I Drossart, N Hoppe, E Kamenjasevic, R Ladeiras-Lopes and 4 more

Abstract readReview
In one paragraph

Review in European heart journal. Digital health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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  19. Social media for cardiac imagers: a review.European heart journal. Cardiovascular Imaging · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Robert M A van der BoonErasmus Medical Center, Cardiovascular Institute, Department of Cardiology, Rotterdam, The Netherlands.
A John CammGenetic and Cardiovascular Sciences Institute, Cardiology Clinical Academic Group, St. Geroge's University of London, Cranmer Terrace, London, SW17 0RE, UK.
C AguiarDepartment of Cardiology, Hospital Santa Cruz, Centro Hospitalar Lisboa Ocidental, Av. Prof. Dr. Reinaldo dos Santos, 2790-134 Carnaxide, Lisbon, Portugal.
E BiasinCentre for IT & IP Law (CiTiP), KU Leuven, Sint-Michielsstraat 6 box 3443, MTC-Building, 3rd floor, room 03.03,3000 Leuven, Belgium.
G BreithardtDepartment of Cardiology II (Electrophysiology), University Hospital Münster, Germany.
H BuenoCentro Nacional de Investigaciones Cardiovasculares (CNIC), Melchor Fernández Almagro, 328029 Madrid, Spain.
I DrossartEuropean Society of Cardiology Patient Forum, The European Heart House, Les Templiers, 2035 Route des Colles, CS 80179 Biot, 06903 Sophia Antipolis, France.
N HoppeCELLS-Centre for Ethics and Law in the Life Sciences, Leibniz University Hannover, Otto-Brenner-Straße 1, 30159 Hannover, Germany.
E KamenjasevicCentre for IT & IP Law (CiTiP), KU Leuven, Sint-Michielsstraat 6 box 3443, MTC-Building, 3rd floor, room 03.03,3000 Leuven, Belgium.
R Ladeiras-LopesUpHill Health, SA, Portugal.
Paul McGreavyEuropean Society of Cardiology Patient Forum, The European Heart House, Les Templiers, 2035 Route des Colles, CS 80179 Biot, 06903 Sophia Antipolis, France.ORCID https://orcid.org/0000-0001-8651-9476
P LanzerInternal Medicine, Middle German Heart Center, Friedrich-Ludwig-Jahn Strasse 2, Bitterfeld D-06749, Germany.
R Vidal-PerezServicio de Cardiología, Unidad de Imagen y Función Cardíaca, Complexo Hospitalario Universitario A, A Coruña 15006, Spain.
Nico BruiningErasmus Medical Center, Cardiovascular Institute, Department of Cardiology, Rotterdam, The Netherlands.ORCID https://orcid.org/0000-0002-0272-5617

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Social media (SoMe) has witnessed remarkable growth and emerged as a dominant method of communication worldwide. Platforms such as Facebook, X (formerly Twitter), LinkedIn, Instagram, TikTok, and YouTube have become important tools of the digital native generation. In the field of medicine, particularly, cardiology, attitudes towards SoMe have shifted, and professionals increasingly utilize it to share scientific findings, network with experts, and enhance teaching and learning. Notably, SoMe is being leveraged for teaching purposes, including the sharing of challenging and intriguing cases. However, sharing patient data, including photos or images, online carries significant implications and risks, potentially compromising individual privacy both online and offline. Privacy and data protection are fundamental rights within European Union treaties, and the General Data Protection Regulation (GDPR) serves as the cornerstone of data protection legislation. The GDPR outlines crucial requirements, such as obtaining 'consent' and implementing 'anonymization', that must be met before sharing sensitive and patient-identifiable information. Additionally, it is vital to consider the patient's perspective and prioritize ethical and social considerations when addressing challenges associated with sharing patient information on SoMe platforms. Given the absence of a peer-review process and clear guidelines, we present an initial approach, a code of conduct, and recommendations for the ethical use of SoMe. In conclusion, this comprehensive review underscores the importance of a balanced approach that ensures patient privacy and upholds ethical standards while harnessing the immense potential of SoMe to advance cardiology practice and facilitate knowledge dissemination.

Indexed as

EducationEthicalLegalPatient informationPrivacySocial media

Identifiers

PMID38774369
PMCPMC11104475

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.