ArticleInternational journal of qualitative studies on health and well-being2024
"I am the one taking care of her and donating blood": lived experiences of role-routines of hospital-based informal caregiving in Nigeria.
Article in International journal of qualitative studies on health and well-being, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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3 citing papers in PubMed.
- Hidden out-of-pocket spending on health: A cross-sectional study on underestimation of catastrophic health spending in Vietnam.Public health in practice (Oxford, England) · 2026Article
- Care mobilities and associated contexts of hospital-based informal caregiving in Nigeria: Towards an explanatory framework.PloS one · 2025Article
- "A Person Taking Care of the Sick is also a Sick Person": Challenges and Consequences of Hospital-Based Informal Caregiving.Inquiry : a journal of medical care organization, provision and financingArticle
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6 authors.
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Abstract
purposeInformal caregivers (ICs) in Africa perform a long list of tasks to support hospitalization care. However, available studies are weak in accounting for the experiences of everyday role-routines of hospital-based informal caregiving (HIC) in under-resourced settings. This article explored the experiences of role-routines among informal caregivers in a Nigerian tertiary health facility.
methodsThe ethnographic exploratory study relied on primary data collected from 75 participants, including 21 ICs, 15 inpatients, 36 hospital staff, and 3 ad-hoc/paid carers in a tertiary health facility in Southwestern Nigeria.
resultsICs perform several essential roles for hospitalized relatives, with each role characterized by a range of tasks. An integrative narrative of everyday routines of HIC as experienced by ICs showed critical complexities and complications involved in seemingly simple tasks of assisting hospitalized relatives with hygiene maintenance, medical investigations, blood donation, resource mobilization, errand-running, patient- and self-care and others. The role-routines are burdensome and ICs' experiences of them revealed the undercurrents of how health systems dysfunctions condition family members to support hospitalization care in Nigeria.
conclusionThe intensity and repetitive nature of role-routines is suggestive of "routinization of suffering". We recommend the closing of gaps driving hospital-based informal caregiving in Africa's under-resourced settings.
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