Evidence map›Paper›PMID 38772594›Full record

ReviewBMJ open2024

Rhetoric of research: a call for renaming the clinical research partnership.

Anessa M Foxwell, Lillie M LaRochelle, Connie M Ulrich

Abstract readReview
In one paragraph

Review in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Anessa M FoxwellBiobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.
Lillie M LaRochelleGeorgetown University School of Nursing, Washington, District of Columbia, USA.
Connie M UlrichBiobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA culrich@nursing.upenn.edu.ORCID 0000-0001-5681-3463

Funding

Individualized Care for At Risk Older AdultsT32NR009356 · NINR · UNIVERSITY OF PENNSYLVANIA · PI Lauren M Massimo, MARY D NAYLOR · 2007 to 2026
$7.8M
Retention in Cancer Clinical Trials: Modeling Patients' Risk Benefit AssessmentsR01CA196131 · NCI · UNIVERSITY OF PENNSYLVANIA · PI ULRICH, CONNIE MARIE · 2015 to 2019
$2.0M
NCI NIH HHS R01 CA196131NINR NIH HHS T32 NR009356
6 · The paper itself

Abstract

objectiveResearch cannot advance without the voluntary participation of human participants. SUMMARY OF ARGUMENTS: Full participation of research participants is often restrained by the traditional research framework, which relegates them to a predefined participant role and allows them only quasi-scripted opportunities to contribute to research processes and outcomes. Terms commonly used to refer to research participants do not reflect their significant role or send a clear message about their value. The authors propose a shift from 'patient participant' to 'participant partner.' Recognition of the true partnership between the participant and the research team, from the consent process to the trial's end, will encourage and enable fuller participation.

conclusionChanging the rhetoric of research in the labelling of research participants will require dialogue. 'Respect for persons' demands it, and the research process will be better for it.

Indexed as

Biomedical ResearchResearch SubjectsHumansInformed ConsentPatient ParticipationAdult oncologyClinical TrialETHICS (see Medical Ethics)

Identifiers

PMID38772594
PMCPMC11112157

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.