Evidence map›Paper›PMID 38771977›Full record

SynthesisCancer medicine2023

Systematic review of patients' and healthcare professionals' views on patient-initiated follow-up in treated cancer patients.

Janine Dretzke, Ava Lorenc, Ada Adriano, Clare Herd, Hisham Mehanna, Paul Nankivell, David J Moore, PETNECK2 Research Team

Abstract readSystematic Review
In one paragraph

Synthesis in Cancer medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
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  10. Patient-perceived barriers and facilitators for risk-stratified follow-up care in lung cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Janine DretzkeInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.ORCID 0000-0002-2591-6918
Ava LorencBristol Medical School: Population Health Sciences, University of Bristol, Bristol, UK.
Ada AdrianoInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Clare HerdInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Hisham MehannaInstitute of Head and Neck Studies and Education, University of Birmingham, Birmingham, UK.
Paul NankivellInstitute of Head and Neck Studies and Education, University of Birmingham, Birmingham, UK.ORCID 0000-0003-4664-6117
David J MooreInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
PETNECK2 Research Team

Funding

Cancer Research UK 25354National Institute for Health Research (NIHR) Programme NIHR200861
6 · The paper itself

Abstract

backgroundCurrent follow-up models in cancer are seen to be unsustainable and inflexible, and there is growing interest in alternative models, such as patient-initiated follow-up (PIFU). It is therefore important to understand whether PIFU is acceptable to patients and healthcare professionals (HCPs).

methodsStandard systematic review methodology aimed at limiting bias was used for study identification (to January 2022), selection and data extraction. Thematic synthesis was undertaken for qualitative data, and survey findings were tabulated and described.

resultsNine qualitative studies and 22 surveys were included, mainly in breast and endometrial cancer. Women treated for breast or endometrial cancer and HCPs were mostly supportive of PIFU. Facilitators for PIFU included convenience, control over own health and avoidance of anxiety-inducing clinic appointments. Barriers included loss of reassurance from scheduled visits and lack of confidence in self-management. HCPs were supportive of PIFU but concerned about resistance to change, unsuitability of PIFU for some patients and costs.

conclusionPIFU is viewed mostly positively by women treated for breast or endometrial cancer, and by HCPs, but further evidence is needed from a wider range of cancers, men, and more representative samples. A protocol was registered with PROSPERO (CRD42020181412).

Indexed as

Health PersonnelAttitude of Health PersonnelBreast NeoplasmsEndometrial NeoplasmsFemaleFollow-Up StudiesHumansMaleNeoplasmsQualitative ResearchSurveys and Questionnairesattitudecancerpatient‐initiated follow‐upqualitative researchsurveysystematic review

Identifiers

PMID38771977
PMCPMC10469665

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.