Evidence map›Paper›PMID 38768413›Full record

ArticleJCO oncology practice2024

Sexual Orientation and Gender Identity Data Collection in Cancer Care: A Nationwide Landscape Assessment Update.

Elizabeth J Cathcart-Rake, Aminah Jatoi, Emily V Dressler, Carol Kittel, Kathryn E Weaver, Chandylen Nightingale, Heather Neuman, Kah Poh Loh, Landscape Committee, Charles Kamen

Abstract read
In one paragraph

Article in JCO oncology practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed.

  1. Article
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  6. Observational
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  14. Collecting sexual orientation and gender identity data in cancer centers.Journal of the National Cancer Institute. Monographs · 2025
    Article
  15. Article
  16. Article
  17. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Elizabeth J Cathcart-RakeDepartment of Oncology, Mayo Clinic, Rochester, MN.ORCID 0000-0003-3532-4913
Aminah JatoiDepartment of Oncology, Mayo Clinic, Rochester, MN.ORCID 0000-0002-1081-189X
Emily V DresslerDepartment of Biostatistics and Data Science, Wake Forest University School of Medicine, Winston-Salem, NC.ORCID 0000-0002-6054-7839
Carol KittelDepartment of Biostatistics and Data Science, Wake Forest University School of Medicine, Winston-Salem, NC.
Kathryn E WeaverDepartment of Social Sciences and Health Policy, Wake Forest University School of Medicine, Winston-Salem, NC.ORCID 0000-0001-9006-4064
Chandylen NightingaleDepartment of Social Sciences and Health Policy, Wake Forest University School of Medicine, Winston-Salem, NC.ORCID 0000-0002-2275-9849
Heather NeumanDepartment of Surgery, University of Wisconsin, Madison, WI.ORCID 0000-0001-7462-8333
Kah Poh LohDepartment of Surgery, University of Rochester, Rochester, NY.ORCID 0000-0002-6978-0418
Landscape Committee
Charles KamenDepartment of Surgery, University of Rochester, Rochester, NY.ORCID 0000-0002-4219-4320

Funding

ECOG-ACRIN NCORP Research Base - TMISTUG1CA189828 · NCI · ECOG-ACRIN MEDICAL RESEARCH FOUNDATION · PI Peter J ODwyer, MITCHELL D. SCHNALL · 2014 to 2026
$199.7M
URCC NCORP Research BaseUG1CA189961 · NCI · UNIVERSITY OF ROCHESTER · PI Michelle C Janelsins, KAREN M. MUSTIAN · 2014 to 2026
$67.7M
Wake Forest NCORP Research BaseUG1CA189824 · NCI · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI Emily Van Meter Dressler, GLENN J LESSER · 2014 to 2026
$57.9M
Mayo Clinic Interdisciplinary Women's Health Research ProgramK12HD065987 · NICHD · MAYO CLINIC ROCHESTER · PI KANTARCI, KEJAL · 2010 to 2023
$6.7M
Older Sexual Minority Patients with Serious Illness: Program-Building to Identify and Address NeedsK07AG076401 · NIA · MAYO CLINIC ROCHESTER · PI JATOI, AMINAH · 2022 to 2025
$596k
Screening Mammography: Early Breast Cancer Detection for All at RiskK23MD019644 · NIMHD · MAYO CLINIC ROCHESTER · PI Elizabeth Cathcart-Rake · 2024 to 2026
$467k
Refinement of a Training Module to Improve Discussions of Sexual Orientation and Gender Identity in Cancer ClinicsR03CA289560 · NCI · MAYO CLINIC ROCHESTER · PI CATHCART-RAKE, ELIZABETH · 2024 to 2024
$81k
NCI NIH HHS R03 CA289560NCI NIH HHS UG1 CA189824NCI NIH HHS UG1 CA189828NCI NIH HHS UG1 CA189961NIA NIH HHS K07 AG076401NICHD NIH HHS K12 HD065987NIMHD NIH HHS K23 MD019644
6 · The paper itself

Abstract

purposeRoutine collection of sexual orientation (SO) and gender identity (GI; collectively SOGI) in cancer clinics advances cancer care equity.

methodsIn 2022, NCI Community Oncology Research Program (NCORP) practice groups were asked about routine collection of SOGI data in the electronic health record. The proportions of practice groups reporting collection of SO and/or GI data were calculated, and practice group characteristics were assessed for associations.

resultsOf 271 practice groups nationwide, 42% (n = 112) collect SO data, 58% (n = 157) collect GI data, and 35% (n = 96) collect both. In multivariate analyses, SO data collection was associated with practice groups having minority outreach staff (odds ratio [OR], 2.07 [95% CI, 1.12 to 3.81];

conclusionSlightly over one third of NCORP practice groups report routinely collecting SOGI data. There are regional differences in data collection, underscoring the need to craft targeted, region-specific interventions focused on boosting the capture and recording of SOGI data in an affirming manner.

Indexed as

Gender IdentityNeoplasmsSexual BehaviorData CollectionFemaleHumansMaleUnited States

Identifiers

PMID38768413
PMCPMC11633324

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.