ArticleBMJ open2024
What is current care for people with Long COVID in England? A qualitative interview study.
Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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The trial behind it
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Integrated care pathway in individuals with Long COVID: STIMULATE-ICP, a cluster-randomized, phase 3 trial.Nature medicine · 2026Trial
- Personalisation at the Core of Success: Process Evaluation of the LISTEN Randomised Controlled Trial Evaluating a Personalised Self-Management Support Intervention for People Living With Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2025Trial
- 'What Do People With Long Covid Want From Healthcare Services?' A Qualitative Exploration From Lived Experience.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Vital yet Fragile: Informal Networks of Support Among Young People Navigating Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- How do people with post-COVID syndrome in Germany experience healthcare and information provision? A qualitative interview study.BMJ open · 2026Article
- Trajectory, healthcare utilisation and recovery in 3590 individuals with long covid: a 4-year prospective cohort analysis.BMJ open · 2026Article
- A new patient-led approach to building research infrastructure and evidence generation.Oxford open immunology · 2026Article
- Article
- How young people experienced long covid services: a qualitative analysis.BMJ paediatrics open · 2025Article
- Health and social service provider perspectives on challenges, approaches, and recommendations for treating long COVID: a qualitative study of Canadian provider experiences.BMC health services research · 2025Article
- Post COVID-19 and Long COVID Symptoms in Otorhinolaryngology-A Narrative Review.Journal of clinical medicine · 2025Review
- Article
- Long COVID science, research and policy.Nature medicine · 2024Review
- The Experiences of Canadian Primary Care Nurses Caring for COVID-Positive Patients: A Qualitative Study.Global qualitative nursing researchArticle
- An interpretative phenomenological analysis study of perceptions around factors relating to coping amongst young people with Long Covid and mental health difficulties in the UK.Health psychology openArticle
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo investigate current care for people with Long COVID in England.
designIn-depth, semistructured interviews with people living with Long COVID and Long COVID healthcare professionals; data analysed using thematic analysis.
settingNational Health Service England post-COVID-19 services in six clinics from November 2022 to July 2023.
participants15 healthcare professionals and 21 people living with Long COVID currently attending or discharged (18 female; 3 male).
resultsHealth professionals and people with lived experience highlighted the multifaceted nature of Long COVID, including its varied symptoms, its impact on people's lives and the complexity involved in managing this condition. These impacts encompass physical, social, mental and environmental dimensions. People with Long COVID reported barriers in accessing primary care, as well as negative general practitioner consultations where they felt unheard or invalidated, though some positive interactions were also noted. Peer support or support systems proved highly valuable and beneficial for individuals, aiding their recovery and well-being. Post-COVID-19 services were viewed as spaces where overlooked voices found validation, offering more than medical expertise. Despite initial challenges, healthcare providers' increasing expertise in diagnosing and treating Long COVID has helped refine care approaches for this condition.
conclusionLong COVID care in England is not uniform across all locations. Effective communication, specialised expertise and comprehensive support systems are crucial. A patient-centred approach considering the unique complexities of Long COVID, including physical, mental health, social and environmental aspects is needed. Sustained access to post-COVID-19 services is imperative, with success dependent on offering continuous rehabilitation beyond rapid recovery, acknowledging the condition's enduring impacts and complexities.
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