Evidence map›Paper›PMID 38760025›Full record

ArticleBMJ global health2024

'Let him die in peace': understanding caregiver's refusal of medical oxygen treatment for children in Nigeria.

Ayobami Adebayo Bakare, Julius Salako, Carina King, Omotayo E Olojede, Damola Bakare, Olabisi Olasupo, Rochelle Burgess, Eric D McCollum, Tim Colbourn, Adegoke G Falade and 3 more

Abstract read
In one paragraph

Article in BMJ global health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Ayobami Adebayo BakareDepartment of Global Public Health, Karolinska Institutet, Stockholm, Sweden bakare.ayobami.adebayo@ki.se.ORCID http://orcid.org/0000-0003-2456-7899
Julius SalakoDepartment of Paediatrics, University College Hospital, Ibadan, Nigeria.
Carina KingDepartment of Global Public Health, Karolinska Institutet, Stockholm, Sweden.ORCID http://orcid.org/0000-0002-6885-6716
Omotayo E OlojedeDepartment of Paediatrics, University College Hospital, Ibadan, Nigeria.
Damola BakareDepartment of Paediatrics, University College Hospital, Ibadan, Nigeria.
Olabisi OlasupoDepartment of Paediatrics, University College Hospital, Ibadan, Nigeria.
Rochelle BurgessInstitute for Global Health, University College London, London, UK.ORCID http://orcid.org/0000-0001-9749-7065
Eric D McCollumGlobal Program in Pediatric Respiratory Sciences, Eudowood Division of Pediatric Respiratory Sciences, Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, Maryland, USA.
Tim ColbournInstitute for Global Health, University College London, London, UK.ORCID http://orcid.org/0000-0002-6917-6552
Adegoke G FaladeDepartment of Paediatrics, University College Hospital, Ibadan, Nigeria.
Helle Molsted-AlvessonDepartment of Global Public Health, Karolinska Institutet, Stockholm, Sweden.
Hamish R GrahamDepartment of Paediatrics, University College Hospital, Ibadan, Nigeria.ORCID http://orcid.org/0000-0003-2461-0463
INSPIRING Project Consortium

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionEfforts to improve oxygen access have focused mainly on the supply side, but it is important to understand demand barriers, such as oxygen refusal among caregivers. We therefore aimed to understand caregiver, community and healthcare provider (HCP) perspectives and experiences of medical oxygen treatments and how these shape oxygen acceptance among caregivers of sick children in Lagos and Jigawa states, which are two contrasting settings in Nigeria.

methodsBetween April 2022 and January 2023, we conducted an exploratory qualitative study using reflexive thematic analysis, involving semistructured interviews with caregivers (Jigawa=18 and Lagos=7), HCPs (Jigawa=7 and Lagos=6) and community group discussions (Jigawa=4 and Lagos=5). We used an inductive-deductive approach to identify codes and themes through an iterative process using the theoretical framework of acceptability and the normalisation process theory as the analytic lens.

resultsMedical oxygen prescription was associated with tension, characterised by fear of death, hopelessness about a child's survival and financial distress. These were driven by community narratives around oxygen, past negative experiences and contextual differences between both settings. Caregiver acceptance of medical oxygen was a sense-making process from apprehension and scepticism about their child's survival chances to positioning prescribed oxygen as an 'appropriate' or 'needed' intervention. Achieving this transition occurred through various means, such as trust in HCPs, a perceived sense of urgency for care, previous positive experience of oxygen use and a symbolic perception of oxygen as a technology. Misconceptions and pervasive negative narratives were acknowledged in Jigawa, while in Lagos, the cost was a major reason for oxygen refusal.

conclusionNon-acceptance of medical oxygen treatment for sick children is modifiable in the Nigerian context, with the root causes of refusal being contextually specific. Therefore, a one-size-fits-all policy is unlikely to work. Financial constraints and community attitudes should be addressed in addition to improving client-provider interactions.

Indexed as

CaregiversOxygen Inhalation TherapyQualitative ResearchAdultChildChild, PreschoolFemaleHumansInfantMaleMiddle AgedNigeriaTreatment Refusalchild healthglobal healthhealth policyqualitative study

Identifiers

PMID38760025
PMCPMC11103205

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.