Evidence map›Paper›PMID 38757674›Full record

ArticleAutism : the international journal of research and practice2024

Being able to be myself: Understanding autonomy and autonomy-support from the perspectives of autistic adults with intellectual disabilities.

Jackie Ryan, Heather M Brown, Anne Borden, Christina Devlin, Adam Kedmy, Austin Lee, David B Nicholas, Bethan Kingsley, Sandy Thompson-Hodgetts

Abstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Jackie RyanUniversity of Alberta, Canada.ORCID 0000-0003-3089-4888
Heather M BrownUniversity of Alberta, Canada.ORCID 0000-0002-5290-0057
Anne BordenAutistic Community Partner, Canada.
Christina DevlinAutistic Community Partner, Canada.
Adam KedmyAutistic Community Partner, Canada.
Austin LeeAutistic Community Partner, Canada.
David B NicholasUniversity of Calgary, Canada.ORCID 0000-0003-4480-322X
Bethan KingsleyUniversity of Alberta, Canada.
Sandy Thompson-HodgettsUniversity of Alberta, Canada.ORCID 0000-0002-6802-2068

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

lay abstractAutistic young adults with intellectual disabilities want to be autonomous but are less autonomous than other people. However, they can be autonomous with appropriate support. We wanted to learn how we can support autistic adults with intellectual disabilities to be more autonomous. We designed our study with help from five autistic community partners to make sure the research was relevant to autistic people and would improve their lives. We talked with eight autistic young adults with intellectual disabilities about autonomy. We defined "talk" as verbal language, as well as non-verbal cues such as body language, facial expressions, vocalizations, and laughter. We did art projects and played games while we talked. We met in small groups over multiple sessions. Our participants told us that being autonomous meant being able to be themselves. They told us three main ways to support their autonomy: (1) having choice and control, (2) being able to communicate in their own way, and (3) being in a safe environment. Families, support staff, and caregivers can use this information to help autistic young adults with intellectual disabilities to be autonomous.

Indexed as

Autistic DisorderIntellectual DisabilityPersonal AutonomyAdultCommunicationFemaleHumansMaleYoung Adultadulthoodautismautonomychoiceopportunityqualitativeself-determinationsupport

Identifiers

PMID38757674
PMCPMC11575095

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.