Evidence map›Paper›PMID 38756746›Full record

ArticleHealth affairs scholar2023

Project Respect: experiences of seriously ill LGBTQ+ patients and partners with their health care providers.

Gary L Stein, Cathy Berkman, Kimberly Acquaviva, Imani Woody, David Godfrey, Noelle Marie Javier, Sean O'Mahony, Christian González-Rivera, Shail Maingi, Carey Candrian and 1 more

Abstract read
In one paragraph

Article in Health affairs scholar, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Article
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  3. A Multidimensional Narrative Review of Disparities in Hospice Care Use.The American journal of hospice & palliative care · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Gary L SteinWurzweiler School of Social Work, Yeshiva University, New York, NY 10033, United States.
Cathy BerkmanGraduate School of Social Service, Fordham University, New York, NY 10023, United States.ORCID https://orcid.org/0000-0002-1776-3931
Kimberly AcquavivaUniversity of Virginia School of Nursing, Charlottesville, VA 22903, United States.ORCID https://orcid.org/0000-0003-2906-7762
Imani WoodyMary's House for Older Adults, Inc., Washington, DC 20017, United States.
David GodfreyCommission on Law and Aging, American Bar Association, Washington, DC 20036, United States.ORCID https://orcid.org/0009-0009-9113-7363
Noelle Marie JavierBrookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, NY 10029, United States.ORCID https://orcid.org/0000-0003-3498-7627
Sean O'MahonyDepartment of Internal Medicine, Rush University Medical Center, Chicago, IL 60612, United States.
Christian González-RiveraBrookdale Center for Healthy Aging, Hunter College, CUNY, New York, NY 10035, United States.ORCID https://orcid.org/0009-0003-7356-3998
Shail MaingiDana-Farber Cancer Institute, South Weymouth, MA 02190, United States.ORCID https://orcid.org/0000-0002-8230-4088
Carey CandrianDepartment of Internal Medicine, University of Colorado School of Medicine, Aurora, CO 80045, United States.ORCID https://orcid.org/0000-0002-2454-506X
William E RosaDepartment of Psychiatry & Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY 10065, United States.ORCID https://orcid.org/0000-0002-0680-8911

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI SELWYN M VICKERS · 1985 to 2026
$347.4M
NCI NIH HHS P30 CA008748
6 · The paper itself

Abstract

Discrimination against lesbian, gay, bisexual, transgender, and queer (LGBTQ+) persons in health care creates barriers to serious illness care, including patients avoiding or delaying necessary care, providers disrespecting wishes of surrogates, and adverse outcomes for patients and families. A cross-sectional mixed-methods study using an online survey was used to determine the extent to which LGBTQ+ patients and spouses, partners, and widows experienced disrespectful or inadequate care due to sexual orientation or gender identity. A total of 290 LGBTQ+ patients and partners reported high levels of disrespectful and inadequate care, including 35.2% stating their provider was insensitive to them because of their identity; 30% reporting their provider was unaware of LGBTQ+ health needs; 23.1% feeling judged; 20.7% experiencing rudeness; 20.3% stating providers did not use their correct pronouns; and 19.7% reporting their treatment decisions were disregarded. Black and Hispanic patients were 2-4 times more likely than non-Hispanic White patients to report discrimination. This study demonstrated high levels of disrespectful and inadequate care towards patients and partners due to being LGBTQ+, which was especially problematic for Black and Hispanic patients and those living in politically conservative regions. Recommendations include federal and state civil rights laws to prohibit LGBTQ+ discrimination and institutional practices to address discrimination, including cultural sensitivity training for staff.

Indexed as

access to carediscriminationLBGTQ+LGBTLGBTQpalliative careserious illness care

Identifiers

PMID38756746
PMCPMC10986209

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.