Evidence map›Paper›PMID 38756138›Full record

ArticleJPGN reports2024

An innovative educational program for adolescents on home parenteral nutrition for the "transition" to adulthood.

Olivier Goulet, Elise Payen, Cécile Talbotec, Catherine Poisson, Amelia Rocha, Karina Brion, Marie-Bernadette Madras, Isabelle Eicher, Isabelle Martinez, Clémence Bégo and 6 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JPGN reports, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Olivier GouletDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Elise PayenDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Cécile TalbotecDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Catherine PoissonDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Amelia RochaDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Karina BrionDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Marie-Bernadette MadrasUnité transversale d'éducation thérapeutique (UTET), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes Paris France.
Isabelle EicherDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Isabelle MartinezDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Clémence BégoDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Céline ChasportHospital Pharmacy, Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes Paris France.
Julie OllivierSocial Assistance Office, Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes Paris France.
Cécile GodotUnité transversale d'éducation thérapeutique (UTET), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes Paris France.
Claude VillainDivision of Gastroenterology and Nutrition, Beaujon Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in adults Clichy France.
Francisca JolyDivision of Gastroenterology and Nutrition, Beaujon Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in adults Clichy France.
Cécile LambeDivision of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Facing with an increasing demand for transition to adult care management, our home parenteral nutrition (HPN) team designed an adolescent therapeutic educational program (ATEP) specifically intended for adolescents on long-term HPN. The aim of this study was to report on the first sessions of this program. Methods: The ATEP is designed in three sessions of five consecutive days, during school holidays over the year. It includes group sessions on catheter handling, disconnecting and connecting the PN and catheter dressing, dealing with unforeseen events (e.g., fever or catheter injury), but also sessions with psychologist, social worker, sports teacher, fashion specialist, meeting with adults who received HPN since childhood. Specific course for the accompanying parents were also provided. Six months after the last session, a 3-day trip to the attraction park "le Futuroscope," Poitiers, France, was organized without any parental presence. Results: After 3 ATEP courses, a total of 16 adolescents have been enrolled. They were aged between 13 and 17 years (median 14 IQR: 14-16.25). All were on long term HPN started during the neonatal period except for four who started PN at a median age of 10 years old (IQR: 1-10). At the time of the ATEP, their median PNDI was 105% (IQR: 95.5-120.8) while receiving a median of six infusions per week (IQR: 5-7). Thirteen received Taurolidine lock procedure. After the ATEP, 11 adolescents could be considered as fully autonomous, 4 as partially autonomous and one failed to gain any autonomy. Course evaluation by adolescents or parents was good to excellent. Conclusion: Through the holistic and multiprofessional approach of this training and the group cohesion, the adolescents were not only able to handle catheter care and PN connections but were able to understand and accept better their illness and project themselves into their own future.

Indexed as

adolescenceintestinal failureparenteral nutritionquality of lifeself care management

Identifiers

PMID38756138
PMCPMC11093938

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.