Evidence map›Paper›PMID 38752459›Full record

ArticleCancer medicine2024

Exploring the perspective of adolescent childhood cancer survivors on follow-up care and their concerns regarding the transition process-A qualitative content analysis.

Jana Winzig, Laura Inhestern, Désirée Sigmund, Verena Paul, Lesley-Ann Hail, Stefan Rutkowski, Gabriele Escherich, Corinna Bergelt

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Article in Cancer medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

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3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. The Impact of Social Determinants on Healthcare Transition Readiness Among Adolescent and Young Adult Childhood Cancer Survivors: A Mixed Methods Systematic Review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jana WinzigDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.ORCID 0000-0002-2116-398X
Laura InhesternDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Désirée SigmundDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Verena PaulDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Lesley-Ann HailDepartment of Pediatric Hematology and Oncology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Stefan RutkowskiDepartment of Pediatric Hematology and Oncology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Gabriele EscherichDepartment of Pediatric Hematology and Oncology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Corinna BergeltDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

Funding

Fördergemeinschaft Kinderkrebs-Zentrum HamburgHamburger KrebsgesellschaftThe endowed professorship for healthcare research in pediatric rare diseases (Kindness for Kids professorship)
6 · The paper itself

Abstract

purposeIn Germany, children diagnosed with cancer survive their initial disease in more than 80%, and the majority will become long-term survivors. Around the age of 18, survivors are transferred to adult healthcare. The transition can be a critical period in the process of care at which many childhood cancer survivors discontinue to participate in regular follow-up care. Hence, the objective of the paper was to explore (a) survivors' attitudes towards pediatric follow-up care and (b) their concerns regarding the transition process to draw conclusions for optimizing pediatric care and transition processes.

methodsWe conducted semi-structured interviews with 21 adolescent childhood cancer survivors between the ages of 14 and 20. The survivors were recruited via a pediatric oncology department of a university hospital in Germany. Based on the principles of qualitative content analysis, a deductive-inductive method according to Kuckartz was applied.

resultsBased on the interview guide and derived from the exploratory research questions, two key categories were generated: (a) Survivors' attitudes towards pediatric follow-up care, which encompasses all formal and emotional aspects of survivors regarding follow-up care, and (b) their concerns regarding transition from pediatric to adult healthcare, where hindering and facilitating factors for a successful transition occur. Our results show high satisfaction among survivors with follow-up care. Nevertheless, they wish to be more integrated into processes and the organization of their follow-up care. Most adolescent survivors do not feel ready for transition.

conclusionThe integration of survivors into the organization processes and routines, and the promotion of emotional detachment from pediatric health care professionals (HCPs) are important to reduce concerns and uncertainties of adolescent survivors regarding the transition process and to promote subjective readiness for transition. To gain confidence in the adult healthcare, it is crucial to provide tailored education depending on individual requirements and needs and to build trusting relationships between survivors and adult HCPs.

Indexed as

Cancer SurvivorsQualitative ResearchTransition to Adult CareAdolescentAdultAftercareContinuity of Patient CareFemaleGermanyHumansMaleNeoplasmsYoung Adultadolescencechildhood cancer survivorsconcernspediatric follow‐up carepsycho‐oncologytransition process

Identifiers

PMID38752459
PMCPMC11097248

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.