Evidence map›Paper›PMID 38750294›Full record

ArticlePediatric research2024

Family caregivers of children transitioning hospital to home receiving nasogastric feeding: descriptive qualitative study.

Samantha Mekhuri, Anam Shahil-Feroz, Natalie Pitch, Munazzah Ambreen, Stephanie Chu, Krista Keilty, Naomi Dussah, Nathalie Major, Julia Orkin, Reshma Amin

Abstract read
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In one paragraph

Article in Pediatric research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Clinician insights into pediatric temporary feeding tube management: Unseen barriers, unclear roles revealed from a prospective mixed methods study.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026
    Article
  2. "It's just us": Families' experiences with temporary tube feeding.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026
    Article
  3. More than meets the eye: The hidden burden of temporary feeding tubes on children and their families.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026
    Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Samantha MekhuriDivision of Respiratory Medicine, Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada.
Anam Shahil-FerozDivision of Respiratory Medicine, Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada.
Natalie PitchDivision of Respiratory Medicine, Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada.
Munazzah AmbreenDivision of Respiratory Medicine, Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada.
Stephanie ChuConnected Care, The Hospital for Sick Children, Toronto, ON, Canada.
Krista KeiltyConnected Care, The Hospital for Sick Children, Toronto, ON, Canada.
Naomi DussahDepartment of Pediatrics, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.
Nathalie MajorDepartment of Pediatrics, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.
Julia OrkinChild Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada.
Reshma AminDivision of Respiratory Medicine, Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada. reshma.amin@sickkids.ca.

Funding

Canadian Institute for Health Research
6 · The paper itself

Abstract

backgroundNasogastric tube (NGT) feeding is used for children unable to tolerate adequate nutrition orally to sustain growth and development. This vulnerable population is at risk of gaps in care because they often lack a medical home due to the transitional nature of the technology. This study explores perspectives and challenges of family caregivers (FCs) of children requiring NGTs transitioning from hospital to home.

methodsSemi-structured qualitative interviews were conducted with FCs at the Hospital for Sick Children and Children's Hospital of Eastern Ontario. Research ethics approval was obtained (SK REB# 1000064641, CHEO REB# 19/133X). Written informed consent was obtained.

resultsThirteen interviews revealed FCs feeling overwhelmed and uncomfortable with first communication of the NGT but learned to manage NGTs with training and virtual care support over time. Initial transition home was described as challenging due to physical, emotional, and financial strain associated with constant management of NGTs.

conclusionsOur study describes the importance of emotional support and additional time for decision making during initial communication to FCs of their child's NGT need, and access to specialized healthcare professionals after transitioning home. Future programs should focus on personalized education and psychosocial support for FCs of children with NGTs at home. IMPACT: This study delves into the challenges faced by family caregivers (FCs) of children requiring nasogastric tube (NGT) feeding when returning home from the hospital. There is a pressing need for more time for FC decision-making and emotional support during the initial communication of the need for an NGT for their child. In addition, FCs require ongoing 24/7 support including access to healthcare professionals specialized in NGT care after the initial transition home. The study highlights the need for personalized education and psychosocial supports for FCs of children with NGTs to improve their experiences at home.

Indexed as

CaregiversEnteral NutritionIntubation, GastrointestinalQualitative ResearchAdultChildChild, PreschoolFamilyFemaleHumansInfantInterviews as TopicMaleOntario

Identifiers

PMID38750294

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.