Evidence map›Paper›PMID 38749696›Full record

ArticleBMJ open2024

Exploring the perceptions and experiences of community rehabilitation for Long COVID from the perspectives of Scottish general practitioners' and people living with Long COVID: a qualitative study.

Kay Cooper, Edward Duncan, Erin Hart-Winks, Julie Cowie, Joanna Shim, Emma Stage, Tricia Tooman, Lyndsay Alexander, Alison Love, Jacqui H Morris and 3 more

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Patient and Professional Perspectives on Long COVID: A Systematic Literature Review and Meta-Synthesis.International journal of environmental research and public health · 2025
    Pooled it
  2. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Kay CooperSchool of Health Sciences, Robert Gordon University, Aberdeen, UK k.cooper@rgu.ac.uk.ORCID 0000-0001-9958-2511
Edward DuncanNMAHP Research Unit, University of Stirling, Stirling, UK.ORCID 0000-0002-3400-905X
Erin Hart-WinksSchool of Health Sciences, Robert Gordon University, Aberdeen, UK.
Julie CowieNMAHP Research Unit, Glasgow Caledonian University, Glasgow, UK.ORCID 0000-0002-4653-1283
Joanna ShimSchool of Health Sciences, Robert Gordon University, Aberdeen, UK.ORCID 0000-0001-9438-9640
Emma StageSchool of Health Sciences, Robert Gordon University, Aberdeen, UK.ORCID 0009-0008-5309-8116
Tricia ToomanNMAHP Research Unit, University of Stirling, Stirling, UK.
Lyndsay AlexanderSchool of Health Sciences, Robert Gordon University, Aberdeen, UK.ORCID 0000-0003-2437-9150
Alison LoveLong COVID Scotland, Aberdeen, UK.
Jacqui H MorrisSchool of Health Sciences, University of Dundee, Dundee, UK.ORCID 0000-0002-9130-686X
Jane OrmerodLong COVID Scotland, Aberdeen, UK.
Jenny PrestonNMAHP Research Unit, University of Stirling, Stirling, UK.ORCID 0000-0001-8891-2538
Paul SwintonSchool of Health Sciences, Robert Gordon University, Aberdeen, UK.ORCID 0000-0001-9663-0696

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo explore the experience of accessing Long COVID community rehabilitation from the perspectives of people with Long COVID and general practitioners (GPs).

designQualitative descriptive study employing one-to-one semistructured virtual interviews analysed using the framework method.

settingFour National Health Service Scotland territorial health boards.

participants11 people with Long COVID (1 male, 10 female; aged 40-65 (mean 53) and 13 GPs (5 male, 8 female).

resultsFour key themes were identified: (1) The lived experience of Long COVID, describing the negative impact of Long COVID on participants' health and quality of life; (2) The challenges of an emergent and complex chronic condition, including uncertainties related to diagnosis and management; (3) Systemic challenges for Long COVID service delivery, including lack of clear pathways for access and referral, siloed services, limited resource and a perceived lack of holistic care, and (4) Perceptions and experiences of Long COVID and its management, including rehabilitation. In this theme, a lack of knowledge by GPs and people with Long COVID on the potential role of community rehabilitation for Long COVID was identified. Having prior knowledge of rehabilitation or being a healthcare professional appeared to facilitate access to community rehabilitation. Finally, people with Long COVID who had received rehabilitation had generally found it beneficial.

conclusionsThere are several patient, GP and service-level barriers to accessing community rehabilitation for Long COVID. There is a need for greater understanding by the public, GPs and other potential referrers of the role of community rehabilitation professionals in the management of Long COVID. There is also a need for community rehabilitation services to be well promoted and accessible to the people with Long COVID for whom they may be appropriate. The findings of this study can be used by those (re)designing community rehabilitation services for people with Long COVID.

Indexed as

COVID-19General PractitionersQualitative ResearchSARS-CoV-2AdultAgedAttitude of Health PersonnelCommunity Health ServicesFemaleHealth Services AccessibilityHumansMaleMiddle AgedPost-Acute COVID-19 SyndromeQuality of LifeScotlandpatient-centered carepost-acute COVID-19 syndromeprimary health carequalitative researchrehabilitation medicine

Identifiers

PMID38749696
PMCPMC11097876

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.