Evidence map›Paper›PMID 38749562›Full record

ArticleThe Journal of rheumatology2024

Which Educational Topics and Smartphone App Functions Are Prioritized by US Patients With Rheumatic and Musculoskeletal Diseases? A Mixed-Methods Study.

William B Nowell, Kelly Gavigan, Kimberly Garza, Ronan O'Beirne, Monika Safford, Michael George, Alexis Ogdie, Jessica A Walsh, Maria I Danila, Shilpa Venkatachalam and 3 more

Abstract read
In one paragraph

Article in The Journal of rheumatology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

William B NowellW.B. Nowell, MSW, PhD, K. Gavigan, MPH, S. Venkatachalam, MPH, PhD, L. Stradford, MPH, E. Rivera, MS, Global Healthy Living Foundation, Upper Nyack, New York.ORCID 0000-0002-4951-6476
Kelly GaviganW.B. Nowell, MSW, PhD, K. Gavigan, MPH, S. Venkatachalam, MPH, PhD, L. Stradford, MPH, E. Rivera, MS, Global Healthy Living Foundation, Upper Nyack, New York; kgavigan@ghlf.org.ORCID 0000-0003-2615-4940
Kimberly GarzaK. Garza, PharmD, MBA, PhD, Auburn University, Harrison College of Pharmacy, Auburn, Alabama.ORCID 0000-0002-4684-372X
Ronan O'BeirneR. O'Beirne, EdD, Division of Continuing Medical Education, University of Alabama at Birmingham, Birmingham, Alabama.
Monika SaffordM. Safford, MD, Division of General Internal Medicine, Weill Cornell Medicine, New York, New York.ORCID 0000-0002-3060-0563
Michael GeorgeM. George, MD, MSCE, A. Ogdie, MD, MSCE, University of Pennsylvania, Philadelphia, Pennsylvania.ORCID 0000-0002-0398-2308
Alexis OgdieM. George, MD, MSCE, A. Ogdie, MD, MSCE, University of Pennsylvania, Philadelphia, Pennsylvania.ORCID 0000-0002-4639-0775
Jessica A WalshJ.A. Walsh, MD, University of Utah, and George E. Wahlen Veterans Affairs Medical Center, Rheumatology, Salt Lake City, Utah.ORCID 0000-0002-4563-0845
Maria I DanilaM.I. Danila, MD, MSc, Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, and Geriatric Research Education and Clinical Center, Birmingham VA Medical Center, Birmingham, Alabama.ORCID 0000-0001-9246-6200
Shilpa VenkatachalamW.B. Nowell, MSW, PhD, K. Gavigan, MPH, S. Venkatachalam, MPH, PhD, L. Stradford, MPH, E. Rivera, MS, Global Healthy Living Foundation, Upper Nyack, New York.ORCID 0000-0003-3889-9034
Laura StradfordW.B. Nowell, MSW, PhD, K. Gavigan, MPH, S. Venkatachalam, MPH, PhD, L. Stradford, MPH, E. Rivera, MS, Global Healthy Living Foundation, Upper Nyack, New York.ORCID 0000-0001-6890-1022
Esteban RiveraW.B. Nowell, MSW, PhD, K. Gavigan, MPH, S. Venkatachalam, MPH, PhD, L. Stradford, MPH, E. Rivera, MS, Global Healthy Living Foundation, Upper Nyack, New York.ORCID 0009-0004-6887-9581
Jeffrey R CurtisJ.R. Curtis, MD, MS, MPH, Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, Alabama, USA.ORCID 0000-0002-8907-8976

Funding

Methods and Health Informatics CoreP30AR072583 · NIAMS · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI JEFFREY R. CURTIS · 2020 to 2026
$5.7M
NIAMS NIH HHS P30 AR072583
6 · The paper itself

Abstract

objectiveWe sought to identify (1) what types of information US adults with rheumatic and musculoskeletal diseases (RMD) perceive as most important to know about their disease, and (2) what functions they would use in an RMD-specific smartphone app.

methodsNominal groups with patients with RMD were conducted using online tools to generate a list of needed educational topics. Based on nominal group results, a survey with final educational items was administered online, along with questions about desired functions of a smartphone app for RMD and wearable use, to patients within a large community rheumatology practice-based research network and the PatientSpot registry. Chi-square tests and multivariate regression models were used to determine differences in priorities between groups of respondents with rheumatic inflammatory conditions (RICs) and osteoarthritis (OA), and possible associations.

resultsAt least 80% of respondents considered finding a rheumatologist, understanding tests and medications, and quickly recognizing and communicating symptoms to doctors as extremely important educational topics. The highest-ranked topic for both RIC and OA groups was "knowing when the medication is not working." The app functions that most respondents considered useful were viewing laboratory results, recording symptoms to share with their rheumatology provider, and recording symptoms (eg, pain, fatigue) or disease flares for health tracking over time. Approximately one-third of respondents owned and regularly used a wearable activity tracker.

conclusionPeople with RMD prioritized information about laboratory test results, medications, and disease and symptom monitoring, which can be used to create educational and digital tools that support patients during their disease journey.

Indexed as

Mobile ApplicationsMusculoskeletal DiseasesPatient Education as TopicRheumatic DiseasesSmartphoneAdultAgedFemaleHumansMaleMiddle AgedSurveys and QuestionnairesUnited Statespatient educationpatient perspectivesurvey

Identifiers

PMID38749562
PMCPMC11530283

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.