Evidence map›Paper›PMID 38745432›Full record

ArticleDiseases of the esophagus : official journal of the International Society for Diseases of the Esophagus2025

Exploring X: barriers to care for eosinophilic esophagitis.

Shivani U Thanawala, Ari Klein, Krish Raval, Jesus Ivan Flores Amaro, Claire A Beveridge, Amanda B Muir, Gary W Falk, Graciela Gonzalez-Hernandez, Kristle L Lynch

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Shivani U ThanawalaDivision of Gastroenterology and Hepatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.ORCID 0000-0002-1835-1381
Ari KleinDepartment of Biostatistics Epidemiology and Statistics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
Krish RavalDivision of Gastroenterology and Hepatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
Jesus Ivan Flores AmaroDepartment of Computational Biomedicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA.
Claire A BeveridgeDepartment of Gastroenterology, Hepatology, and Nutrition, Digestive Diseases and Surgery Institute, Cleveland Clinic Foundation, Cleveland, OH, USA.
Amanda B MuirDivision of Gastroenterology, Hepatology and Nutrition, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Gary W FalkDivision of Gastroenterology and Hepatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
Graciela Gonzalez-HernandezDepartment of Computational Biomedicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA.
Kristle L LynchDivision of Gastroenterology and Hepatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.

Funding

Social Media Mining for PharmacovigilanceR01LM011176 · NLM · UNIVERSITY OF PENNSYLVANIA · PI GONZALEZ HERNANDEZ, GRACIELA, SHEN, LI · 2012 to 2021
$4.5M
NLM NIH HHS R01 LM011176NLM NIH HHS R01LM011176
6 · The paper itself

Abstract

Patients with chronic diseases have increasingly turned to social media to discuss symptoms and share the challenges they face with disease management. The primary aim of this study is to use naturally occurring data from X (formerly known as Twitter) to identify barriers to care faced by individuals affected by eosinophilic esophagitis (EoE). For this qualitative study, the X application programming interface with academic research access was used to search for posts that referenced EoE between 1 January 2019 and 10 August 2022. The posts were identified as being either related to barriers to care for EoE or not. Those related to barriers to care were further categorized by the type of barrier that was expressed. A total of 8636 EoE-related posts were annotated of which 12.1% were related to barriers to care in EoE. The themes that emerged about barriers to care included: dietary challenges, limited treatment options, lack of community support, lack of physician awareness of disease, misinformation, cost of care, lack of patient belief in disease or trust in physician, and limited access to care. Saturation of themes was achieved. This study highlights barriers to care in EoE using readily accessible social media data that is not derived from a curated research setting. Identifying these obstacles is key to improving care for this chronic disease.

Indexed as

Eosinophilic EsophagitisHealth Services AccessibilitySocial MediaAttitude of Health PersonnelChronic DiseaseCost of IllnessHealth Knowledge, Attitudes, PracticeHumansQualitative Researchbarriers to careeosinophilic esophagitissocial mediaTwitterX

Identifiers

PMID38745432
PMCPMC11734665

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.