Evidence map›Paper›PMID 38730103›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2024

Iterative Development of an Interactive Website to Support Shared Decision-Making in Metastatic Breast Cancer.

Claire C Conley, Sophia Cumbo, Jacqueline Chavez Ochoa, Afton Boles, Jennifer D Rodriguez, Nicole Schwab, David Farrell, Suzan Abduljawad, Claudine Isaacs, Suzanne C O'Neill

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Claire C ConleyDepartment of Oncology, Georgetown University, Washington, DC, USA. claire.conley@georgetown.edu.ORCID 0000-0001-7695-2428
Sophia CumboDepartment of Oncology, Georgetown University, Washington, DC, USA.
Jacqueline Chavez OchoaDepartment of Oncology, Georgetown University, Washington, DC, USA.
Afton BolesDepartment of Oncology, Georgetown University, Washington, DC, USA.
Jennifer D RodriguezDepartment of Oncology, Georgetown University, Washington, DC, USA.
Nicole SchwabDepartment of Oncology, Georgetown University, Washington, DC, USA.
David FarrellPeople Designs, Durham, NC, USA.
Suzan AbduljawadDepartment of Oncology, Georgetown University, Washington, DC, USA.
Claudine IsaacsDepartment of Oncology, Georgetown University, Washington, DC, USA.
Suzanne C O'NeillDepartment of Oncology, Georgetown University, Washington, DC, USA.ORCID 0000-0001-9942-6041

Funding

Tissue Culture Shared ResourceP30CA051008 · NCI · GEORGETOWN UNIVERSITY · PI MARCUS S NOEL · 1990 to 2026
$71.5M
Training Program in Cancer Population Science (CaPS)T32CA261787 · NCI · GEORGETOWN UNIVERSITY · PI Lucile L. Adams-Campbell, Suzanne C. O'Neill · 2021 to 2026
$1.1M
The FYI on MRI: A Multilevel Decision Support Intervention for Screening Breast MRIK08CA270402 · NCI · GEORGETOWN UNIVERSITY · PI Claire C Conley · 2023 to 2026
$777k
NCI NIH HHS K08 CA270402NCI NIH HHS K08CA270402NCI NIH HHS P30 CA051008NCI NIH HHS P30CA051008NCI NIH HHS T32 CA261787NCI NIH HHS T32CA261787
6 · The paper itself

Abstract

Recent treatment advances have resulted in significantly increased survival times following metastatic breast cancer (MBC) diagnosis. Novel treatment approaches-and their related side effects-have changed the landscape of MBC treatment decision-making. We developed a prototype of an online educational tool to prepare patients with MBC for shared decision-making with their oncologists. We describe the five phases of tool development: (1) in-depth, semi-structured qualitative interviews and (2) feedback on storyboards of initial content with patients with MBC and oncology providers. This was followed by three phases of iterative feedback with patients in which they responded to (3) initial, non-navigable website content and (4) a beta version of the full website. In the final phase (5), patients newly diagnosed with MBC (N = 6) used the website prototype for 1 week and completed surveys assessing acceptability, feasibility, treatment knowledge, preparation for decision-making, and self-efficacy for decision-making. Participants in Phase 1 characterized a cyclical process of MBC treatment decision-making and identified key information needs. Website content and structure was iteratively developed in Phases 2-4. Most participants in Phase 5 (n = 4) accessed the website 2-5 times. All participants who accessed the website at least once (n = 5) felt they learned new information from the website prototype and would recommend it to others newly-diagnosed with MBC. After using the website prototype, participants reported high preparation and self-efficacy for decision-making. This multiphase, iterative process resulted in a prototype intervention designed to support decision-making for MBC patients.

Indexed as

Breast NeoplasmsDecision Making, SharedInternetAdultAgedDecision MakingFemaleHumansMiddle AgedNeoplasm MetastasisPatient Education as TopicPatient ParticipationPhysician-Patient RelationsIntervention developmentMetastatic breast cancerShared decision-makingWeb-based interventions

Identifiers

PMID38730103
PMCPMC11550259

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.