ArticleWorld psychiatry : official journal of the World Psychiatric Association (WPA)2024
The lived experience of mental disorders in adolescents: a bottom-up review co-designed, co-conducted and co-written by experts by experience and academics.
Article in World psychiatry : official journal of the World Psychiatric Association (WPA), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Toward Participatory Precision Health With Co-Designed Recommendations: Systematic Review of Just-in-Time Adaptive Interventions in Adolescents and Young Adults.Journal of medical Internet research · 2026Pooled it
- Informal Coercion Experienced by Adolescents in Mental Health Care-A Systematic Review.International journal of mental health nursing · 2026Pooled it
- Caring for the world's youngest and loneliest population requires a change in approach.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026Article
- Measurement-Based Mental Health Care for Adolescents in Africa: Protocol for a Computerized Adaptive Test.JMIR research protocols · 2026Article
- Quality of life, disability and antipsychotics-related side effects in schizophrenia spectrum and bipolar disorder: the role of patient-reported outcome measures.European archives of psychiatry and clinical neuroscience · 2026Article
- Psychosis Polyrisk Score and Polygenic Risk Score to Improve Detection and Prognosis in Individuals at Clinical High Risk for Psychosis: Model Development and Internal Validation.Schizophrenia bulletin · 2026Article
- Exploring illness and recovery in eating disorders: a qualitative study of patients' group therapies experiences.Journal of eating disorders · 2026Article
- Child and adolescent psychiatry: challenges, solutions, opportunities, and future directions.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026Article
- Real-world comprehensive care of people living with schizophrenia: recommendations across different settings and clinical stages.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026Article
- Building EVA (Journal of medical Internet research · 2026Article
- Persistent negative symptoms in the EULAST cohort: impact on functional outcome.Schizophrenia (Heidelberg, Germany) · 2026Article
- The lived experience of persons who attempt suicide: a bottom-up review co-designed, co-produced and co-written by experts by experience and academics.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026Article
- Youth's mental health journeys through the COVID-19 pandemic using arts-based methods in virtual environments.PloS one · 2026Article
- Illness explanatory models of depression among young people in low-resource settings: A qualitative study in Ghana and Zimbabwe.PloS one · 2026Article
- Heterogeneity in sexual functioning among women with eating disorders: exploring the role of body trusting and need for approval using mixture regression modeling.Journal of eating disorders · 2025Article
- My risk perception; perspectives from youth at familial risk for bipolar disorder: a qualitative study.BMC psychiatry · 2025Article
- 'Remember, You Are Not Alone': A Qualitative Internet-Mediated Study of Anxiety Among Adolescents on Reddit.International journal of mental health nursing · 2025Article
- Exploring the lived experiences of depression among youths and their guardians in sub-Saharan Africa: a systematic review protocol.Systematic reviews · 2025Article
- Beyond symptom improvement: transdiagnostic and disorder-specific ways to assess functional and quality of life outcomes across mental disorders in adults.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2025Article
- Learning From Those Who Have Lived: A Scoping Review Exploring the Involvement of Lived Experience Co-Design in Eating Disorder Research Methodologies.The International journal of eating disorders · 2025Article
Corrections and comments
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Authors and funding
40 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
We provide here the first bottom-up review of the lived experience of mental disorders in adolescents co-designed, co-conducted and co-written by experts by experience and academics. We screened first-person accounts within and outside the medical field, and discussed them in collaborative workshops involving numerous experts by experience - representing different genders, ethnic and cultural backgrounds, and continents - and their family members and carers. Subsequently, the material was enriched by phenomenologically informed perspectives and shared with all collaborators. The inner subjective experience of adolescents is described for mood disorders, psychotic disorders, attention-deficit/hyperactivity disorder, autism spectrum disorders, anxiety disorders, eating disorders, externalizing disorders, and self-harm behaviors. The recollection of individuals' past histories also indexes the prodromal (often transdiagnostic) features predating the psychiatric diagnosis. The experience of adolescents with mental disorders in the wider society is described with respect to their family, their school and peers, and the social and cultural context. Furthermore, their lived experience of mental health care is described with respect to receiving a diagnosis of mental disorder, accessing mental health support, receiving psychopharmacological treatment, receiving psychotherapy, experiencing peer support and mental health activism, and achieving recovery. These findings can impact clinical practice, research, and the whole society. We hope that this co-designed, co-conducted and co-written journey can help us maintain our commitment to protecting adolescents' fragile mental health, and can help them develop into a healthy, fulfilling and contributing adult life.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.