ArticleThe British journal of general practice : the journal of the Royal College of General Practitioners2024
Lived experiences of end-of-life care at home in the UK: a scoping review of qualitative research.
Article in The British journal of general practice : the journal of the Royal College of General Practitioners, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Practices and perspectives on dying at home in Norwegian home care services - a secondary analysis of qualitative data.BMC palliative care · 2026Article
- End-of-life care in the home: A realistic or unachievable goal?Asia-Pacific journal of oncology nursing · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHome is the preferred place of care and death for most people with advanced illness.
aimTo examine and describe the published qualitative literature on the lived experiences of dying at home, to characterise the participants and their contexts, and to identify key gaps in knowledge, with a view to informing future research. DESIGN AND
settingA scoping literature review, undertaken in accordance with the PRISMA-ScR guideline, examined studies focusing on the lived experiences of dying at home in the UK.
methodThe online databases CINAHL and MEDLINE were searched with relevant Medical Subject Heading (MeSH) terms and keywords to identify primary qualitative research published between 2010 and 2022, exploring the lived experiences of patients, families, and/or unpaid carers in the UK.
resultsIn total, 442 articles were screened, 61 of which underwent full-text review; 13 studies were retained in the final set. All studies explored the experience of bereaved family and/or unpaid carers, and one study interviewed a person who was dying. Where specified, the majority of experiences related to deaths from cancer, many with specialist palliative care team involvement. Included studies yielded a breadth of diverse findings, with the most common subject themes relating to the availability and quality of care, and support for families and carers.
conclusionThere is limited published evidence exploring the lived experiences of end-of-life care at home and this constrains the extent to which community services can be evidence informed in their design and delivery. More research is needed to examine the first-hand experiences of people who are dying at home, particularly for those with non-cancer conditions and where specialist services are not involved.
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Registered trials
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