Evidence map›Paper›PMID 38720094›Full record

ArticleScience and engineering ethics2024

The Ethics of Electronic Tracking Devices in Dementia Care: An Interview Study with Developers.

Jared Howes, Yvonne Denier, Tijs Vandemeulebroucke, Chris Gastmans

Abstract read
In one paragraph

Article in Science and engineering ethics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jared HowesCentre for Biomedical Ethics and Law, KU Leuven, Leuven, Belgium. Jaredmichael.Howes@kuleuven.be.ORCID 0000-0001-6459-9655
Yvonne DenierCentre for Biomedical Ethics and Law, KU Leuven, Leuven, Belgium.ORCID 0000-0002-3715-4236
Tijs VandemeulebrouckeSustainable AI Lab, Institute for Science and Ethics, University of Bonn, Bonn, Germany.ORCID 0000-0001-5683-6067
Chris GastmansCentre for Biomedical Ethics and Law, KU Leuven, Leuven, Belgium.ORCID 0000-0002-5522-0639

Funding

Fonds Wetenschappelijk Onderzoek G0A5822N
6 · The paper itself

Abstract

Wandering is a symptom of dementia that can have devastating consequences on the lives of persons living with dementia and their families and caregivers. Increasingly, caregivers are turning towards electronic tracking devices to help manage wandering. Ethical questions have been raised regarding these location-based technologies and although qualitative research has been conducted to gain better insight into various stakeholders' views on the topic, developers of these technologies have been largely excluded. No qualitative research has focused on developers' perceptions of ethics related to electronic tracking devices. To address this, we performed a qualitative semi-structured interview study based on grounded theory. We interviewed 15 developers of electronic tracking devices to better understand how they perceive ethical issues surrounding the design, development, and use of these devices within dementia care. Our results reveal that developers are strongly motivated by moral considerations and believe that including stakeholders throughout the development process is critical for success. Developers felt a strong sense of moral obligation towards topics within their control and a weaker sense of moral obligation towards topics outside their control. This leads to a perceived moral boundary between development and use, where some moral responsibility is shifted to end-users.

Indexed as

CaregiversDementiaInterviews as TopicMoral ObligationsQualitative ResearchElectronicsFemaleGrounded TheoryHumansMotivationStakeholder ParticipationWandering BehaviorDementiaDevelopmentEthicsLocation-based technologiesWandering

Identifiers

PMID38720094
PMCPMC11078786

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.