Evidence map›Paper›PMID 38711035›Full record

ArticleBMC palliative care2024

Barriers and drivers of public engagement in palliative care, Scoping review.

Pilar Barnestein-Fonseca, Alicia Nebro-Gil, Virginia P Aguiar-Leiva, Eva Víbora-Martín, Inmaculada Ruiz-Torreras, Maria Luisa Martín-Rosello, on behalf iLIVE Group

Abstract readScoping Review
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Pilar Barnestein-FonsecaInstituto de Formación E Investigación CUDECA, Fundación CUDECA Instituto IBIMA-BIONAND, Grupo CA15, Málaga, Spain. pilarbarnestein@cudeca.org.
Alicia Nebro-GiliLIVE Consortium.
Virginia P Aguiar-LeivaiLIVE Consortium.
Eva Víbora-MartíniLIVE Consortium.
Inmaculada Ruiz-TorrerasiLIVE Consortium.
Maria Luisa Martín-RoselloiLIVE Consortium.
on behalf iLIVE Group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe integral model of Palliative Care recognizes the community as essential element in improving quality of life of patients and families. It is necessary to find a formula that allows the community to have a voice. The aim of this scoping review is to identify barriers and facilitators to engage community in PC.

methodsSystematic search was conducted in NICE, Cochrane Library, Health Evidence, CINAHL and PubMed database. KEYWORDS: Palliative care, End of life care, community networks, community engagement, public engagement, community participation, social participation, barriers and facilitators.

resultsNine hundred seventy-one results were obtained. Search strategy and inclusion criteria yielded 13 studies that were read in detail to identify factors influencing community engagement in palliative care, categorized into: Public health and public engagement; Community attitudes towards palliative care, death and preferences at the end of life; Importance of volunteers in public engagement programs; Compassionate communities.

conclusionSocietal awareness must be a facilitated process to catalyse public engagement efforts. National policy initiatives and regional system support provide legitimacy and focus is essential for funding. The first step is to get a sense of what is important to society, bearing in mind cultural differences and to channel those aspects through health care professionals; connecting the most assistential part with community resources. The process and long-term results need to be systematically evaluated.

Indexed as

Palliative CareCommunity NetworksCommunity ParticipationHumansTerminal CareBarriers and Facilitators/driversCommunity engagementPalliative CarePublic engagement

Identifiers

PMID38711035
PMCPMC11075334

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.