Evidence map›Paper›PMID 38708694›Full record

ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2024

Relational Solidarity and Conflicting Ethics in Dementia Care in Urban India.

Bianca Brijnath, Rachita Rao, Upasana Baruah, Josefine Antoniades, Santosh Loganathan, Mathew Varghese, Claudia Cooper, Mike Kent, Briony Dow

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In one paragraph

Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Bianca BrijnathSocial Gerontology Division, National Ageing Research Institute, Melbourne, Victoria, Australia.ORCID 0000-0002-0536-6859
Rachita RaoDepartment of Psychiatry, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India.
Upasana BaruahSocial Gerontology Division, National Ageing Research Institute, Melbourne, Victoria, Australia.
Josefine AntoniadesSocial Gerontology Division, National Ageing Research Institute, Melbourne, Victoria, Australia.
Santosh LoganathanDepartment of Psychiatry, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India.
Mathew VargheseDepartment of Psychiatry, St John's Medical College, Bengaluru, Karnataka, India.
Claudia CooperWolfson Institute of Population Health, Queen Mary University of London, London, United Kingdom.ORCID 0000-0002-2777-7616
Mike KentSchool of Media, Creative Arts and Social Inquiry, Curtin University, Perth, Western Australia, Australia.
Briony DowMelbourne School of Population and Global Health, University of Melbourne, Melbourne, Victoria, Australia.ORCID 0000-0002-4186-314X

Funding

Alzheimer's Association US AARG-20-681419
6 · The paper itself

Abstract

objectivesUsing the concept of relational solidarity, we examine how autonomy, equality, dignity, and personhood are practiced in the care of people living with dementia at home in urban India.

methodsVideo interviews with 19 family carers and 25 health providers conducted in English, Hindi, and Kannada in Bengaluru between March and July 2022. Data were translated into English and thematically analyzed.

resultsFamily carers and providers unanimously agreed that people with dementia should be respected and cared for. Concurrently, they perceived people with dementia as being "like a kid" and used the analogy of a parent-child relationship to understand their care responsibilities. This analogy informed how ethical principles such as personhood and equality were reframed in the relationships between family carers and people with dementia, as well as how carers and providers maintained the safety but undermined the autonomy of people with dementia through restricting their movements inside and outside the home. DISCUSSION: There can be relational solidarity in dementia care at home in urban India but also contradictions in the interpretations and applications of the ethical principles of autonomy, equality, dignity, and personhood. As such, a more organic, grassroots model of ethical practice is needed to frame care and provide material support to families in India.

Indexed as

CaregiversDementiaPersonal AutonomyAdultAgedFemaleHumansIndiaMaleMiddle AgedPersonhoodRespectUrban PopulationAlzheimer’sCross-cultureDiversityFamiliesHome

Identifiers

PMID38708694
PMCPMC11157626

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.