ArticleInternational journal of developmental disabilities2024
The experiences of new mothers accessing feeding support for infants with down syndrome during the COVID-19 pandemic.
Article in International journal of developmental disabilities, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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Who cites it
6 citing papers in PubMed.
- Breastfeeding with Extra Care: A Qualitative Insight of Mothers of Children with Down Syndrome in Rwanda.Rwanda journal of medicine and health sciences · 2026Article
- Health service access and delivery for people living with rare disorders: a scoping review.Orphanet journal of rare diseases · 2026Article
- Caregiving Demands and Depression Symptoms among Caregivers of Individuals with Down Syndrome during the COVID-19 Pandemic.medRxiv : the preprint server for health sciences · 2026Article
- Experiences of feeding young children with Down syndrome: parents' and health professionals' perspectives.International journal of developmental disabilities · 2025Article
- A Scoping Review of the Complementary Feeding Practices and Early Eating Experiences of Children With Down Syndrome.Journal of pediatric psychology · 2023Article
- Disabled people's experiences accessing healthcare services during the COVID-19 pandemic: a scoping review.BMC health services research · 2023Article
Corrections and comments
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Authors and funding
5 authors.
Funding
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Abstract
Infants with Down syndrome are more likely to experience feeding problems and mothers are likely to require more feeding support than mothers of typically developing infants. During the COVID-19 pandemic, many feeding support services changed from face-to-face to online, which impacted some maternal feeding experiences negatively, but no studies to date have explored the impact for mothers of infants with Down syndrome. Thematic analysis was conducted on semi-structured interviews from thirteen new mothers of infants (aged 8-17 months) with Down syndrome in the UK. Three superordinate themes were generated: (1) Every baby with Down syndrome has a unique journey, (2) There's no point asking, they won't know, (3) Lack of in-person support. Many mothers expressed frustrations over health professionals' lack of Down syndrome specific knowledge resulting in unmet needs, further magnified due to the nature of the virtual support being offered. Moreover, mothers struggled with reduced social support from other mothers when encountering feeding problems. These results hold real-world implications for health professionals who could provide more specialised face-to-face feeding support to mothers of infants with Down syndrome. This should be prioritised for children's overall development and mothers' wellbeing.
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Registered trials
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