ArticleActa oncologica (Stockholm, Sweden)2024
The first decade of the Danish Palliative Care Database: improvements and ongoing challenges in the quality and use of specialised palliative care.
Article in Acta oncologica (Stockholm, Sweden), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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3 citing papers in PubMed.
- Using Complex Interventions to Develop Programme Theory for a Family-Focused Model of Telepalliative Care.Scandinavian journal of caring sciences · 2026Article
- Healthcare costs and resource use in advanced breast cancer at the end of life: a register study.Acta oncologica (Stockholm, Sweden) · 2026Article
- Heterogeneity of professional goals among residents enrolled in a palliative care track: results of a national online survey in France.Medical education online · 2025Article
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6 authors.
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Abstract
backgroundDanish Palliative Care Database comprises five quality indicators: (1) Contact with specialised palliative care (SPC) among referred patients, (2) Waiting time of less than 10 days, (3) Proportion of patients who died from (A) cancer or (B) non-cancer diseases, and had contact with SPC, (4) Proportion of patients completing the patient-reported outcome measure at baseline (EORTC QLQ-C15-PAL), and (5) Proportion of patients discussed at a multidisciplinary conference. PURPOSE: To investigate changes in the quality indicators from 2010 until 2020 in cancer and non-cancer patients. Patients/material: Patients aged 18+ years who died from 2010 until 2020.
methodRegister-based study with the Danish Palliative Care Database as the main data source. Indicator changes were reported as percentage fulfilment.
resultsFrom 2010 until 2020, the proportion of patients with non-cancer diseases in SPC increased slightly (2.5-7.2%). In 2019, fulfilment of the five indicators for cancer and non-cancer were: (1) 81% vs. 73%; (2) 73% vs. 68%; (3A) 50%; (3B) 2%; (4) 73% vs. 66%; (5) 73% vs. 65%. Whereas all other indicators improved, the proportion of patients waiting less than 10 days from referral to contact decreased. Differences between type of unit were found, mainly lower for hospice.
interpretationMost patients in SPC had cancer. All indicators except waiting time improved during the 10-year period. The establishment of the Danish Palliative Care Database may have contributed to the positive development; however, SPC in Denmark needs to be improved, especially regarding a reduction in waiting time and enhanced contact for non-cancer patients.
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