Evidence map›Paper›PMID 38696248›Full record

ArticleJournal of medical Internet research2024

IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey.

Ismay A E de Beijer, Selina R van den Oever, Eliana Charalambous, Giorgio Cangioli, Julia Balaguer, Edit Bardi, Marie Alfes, Adela Cañete Nieto, Marisa Correcher, Tiago Pinto da Costa and 24 more

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

34 authors.

Ismay A E de BeijerPrincess Máxima Center for Pediatric Oncology, Utrecht, Netherlands.ORCID 0009-0000-5891-2959
Selina R van den OeverPrincess Máxima Center for Pediatric Oncology, Utrecht, Netherlands.ORCID 0000-0002-6227-3472
Eliana CharalambousHealth Level Seven Europe, Brussels, Belgium.ORCID 0000-0001-8105-0605
Giorgio CangioliHealth Level Seven Europe, Brussels, Belgium.ORCID 0000-0003-1918-376X
Julia BalaguerHospital Universitario y Politécnico La Fe, Valencia, Spain.ORCID 0000-0002-7346-6499
Edit BardiSt Anna Children's Hospital, Vienna, Austria.ORCID 0000-0001-7424-6255
Marie AlfesChildhood Cancer International Europe, Vienna, Austria.ORCID 0000-0001-5006-9573
Adela Cañete NietoHospital Universitario y Politécnico La Fe, Valencia, Spain.ORCID 0000-0002-5669-5097
Marisa CorrecherInstituto Investigación Sanitaria La Fe, Valencia, Spain.ORCID 0000-0003-1856-4851
Tiago Pinto da CostaChildhood Cancer International Europe, Vienna, Austria.ORCID 0009-0005-5837-1255
Alexander Degelsegger-MárquezGesundheit Österreich GmbH, Vienna, Austria.ORCID 0000-0002-0493-4711
Vanessa DüsterDepartment of Studies and Statistics for Integrated Research and Projects, St Anna Children's Cancer Research Institute, Vienna, Austria.ORCID 0000-0003-4549-2216
Anna-Liesa FilbertDivision of Childhood Cancer Epidemiology, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany.ORCID 0000-0002-3841-5063
Desiree GrabowDivision of Childhood Cancer Epidemiology, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany.ORCID 0000-0002-4853-3303
Gerald GredingerGesundheit Österreich GmbH, Vienna, Austria.ORCID 0009-0001-1703-769X
Hannah GsellChildhood Cancer International Europe, Vienna, Austria.ORCID 0009-0004-8529-549X
Riccardo HauptDiagnosi, Osservazione, Prevenzione dopo trattamento Oncologico Clinic, Department of Hematology/Oncology, Istituto di Ricovero e Cura a Carattere Scientifico Istituto Giannina Gaslini, Genova, Italy.ORCID 0000-0003-0571-8460
Maria van HelvoirtUniversity Hospitals Leuven, Katholieke Universiteit Leuven, Leuven, Belgium.ORCID 0009-0009-9048-3248
Ruth LadensteinSt Anna Children's Hospital, Vienna, Austria.ORCID 0000-0001-6548-3873
Thorsten LangerUniversitätsklinikum Schleswig-Holstein, Campus Lübeck, Lübeck, Germany.ORCID 0000-0002-7047-2957
Anja LaschkolnigGesundheit Österreich GmbH, Vienna, Austria.ORCID 0009-0000-4001-400X
Monica MuracaDiagnosi, Osservazione, Prevenzione dopo trattamento Oncologico Clinic, Department of Hematology/Oncology, Istituto di Ricovero e Cura a Carattere Scientifico Istituto Giannina Gaslini, Genova, Italy.ORCID 0000-0001-5259-7046
Saskia M F PluijmPrincess Máxima Center for Pediatric Oncology, Utrecht, Netherlands.ORCID 0000-0002-4459-7799
Jelena RasconVilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.ORCID 0000-0003-4420-6943
Günter SchreierCenter for Health and Bioresources, Austrian Institute of Technology, Graz, Austria.ORCID 0000-0003-3724-4255
Zuzana TomášikovaChildhood Cancer International Europe, Vienna, Austria.ORCID 0009-0000-8230-0581
Florian TraunerGesundheit Österreich GmbH, Vienna, Austria.ORCID 0000-0001-7158-7759
Justas TrinkūnasVilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.ORCID 0000-0002-6559-049X
Kathrin TrunnerGesundheit Österreich GmbH, Vienna, Austria.ORCID 0009-0003-4953-4476
Anne UyttebroeckUniversity Hospitals Leuven, Katholieke Universiteit Leuven, Leuven, Belgium.ORCID 0000-0001-5644-424X
Leontien C M KremerPrincess Máxima Center for Pediatric Oncology, Utrecht, Netherlands.ORCID 0000-0001-7422-3248
Helena J H van der Pal *Princess Máxima Center for Pediatric Oncology, Utrecht, Netherlands.ORCID 0000-0003-2253-2115
Catherine Chronaki *Health Level Seven Europe, Brussels, Belgium.ORCID 0000-0001-6638-8448
PanCareSurPass ConsortiumSee Acknowledgments, .

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTo overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and interoperable SurPass (version 2.0) will be optimized, implemented, and evaluated at 6 LTFU care centers representing 6 European countries and 3 distinct health system scenarios: (1) national electronic health information systems (EHISs) in Austria and Lithuania, (2) regional or local EHISs in Italy and Spain, and (3) cancer registries or hospital-based EHISs in Belgium and Germany.

objectiveWe aimed to identify and describe barriers and facilitators for SurPass (version 2.0) implementation concerning semiautomation of data input, interoperability, data protection, privacy, and cybersecurity.

methodsIT specialists from the 6 LTFU care centers participated in a semistructured digital survey focusing on IT-related barriers and facilitators to SurPass (version 2.0) implementation. We used the fit-viability model to assess the compatibility and feasibility of integrating SurPass into existing EHISs.

resultsIn total, 13/20 (65%) invited IT specialists participated. The main barriers and facilitators in all 3 health system scenarios related to semiautomated data input and interoperability included unaligned EHIS infrastructure and the use of interoperability frameworks and international coding systems. The main barriers and facilitators related to data protection or privacy and cybersecurity included pseudonymization of personal health data and data retention. According to the fit-viability model, the first health system scenario provides the best fit for SurPass implementation, followed by the second and third scenarios.

conclusionsThis study provides essential insights into the information and IT-related influencing factors that need to be considered when implementing the SurPass (version 2.0) in clinical practice. We recommend the adoption of Health Level Seven Fast Healthcare Interoperability Resources and data security measures such as encryption, pseudonymization, and multifactor authentication to protect personal health data where applicable. In sum, this study offers practical insights into integrating digital health solutions into existing EHISs.

Indexed as

TelemedicineCancer SurvivorsComputer SecurityElectronic Health RecordsEuropeHumansSurveys and QuestionnairesSurvivorshipcancer survivorsinformation and technologylong-term follow up carepediatric oncologySurPass, eHealthsurvivorshipSurvivorship Passport

Identifiers

PMID38696248
PMCPMC11099813

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.