Evidence map›Paper›PMID 38689763›Full record

ArticleFrontiers in public health2024

Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth.

Luciana Massi, Carolyn Lewis, Skye Stewart, Diana Jans, Rupesh Gautam, Lina Jalloub, Anneka Bowman, Philippa Middleton, Sue Vlack, Frances M Boyle and 4 more

Open access · goldAbstract readMulticenter Study
In one paragraph

Article in Frontiers in public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
2.1field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Nothing About Us Without Us: Consolidating Experiences of Maternity Care to Advance Equity.BJOG : an international journal of obstetrics and gynaecology · 2025
    Article
  3. Consulting With First Nations Communities to Develop Text-Based Support for Grieving Fathers.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 6 institutions in 1 country.

Luciana Massi *Stillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Carolyn Lewis *Curtin Medical School, Curtin University, Perth, WA, Australia.
Skye StewartRed Nose Australia, Melbourne, VIC, Australia.
Diana JansApunipima Cape York Health Council, Cairns, QLD, Australia.
Rupesh GautamStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Lina JalloubStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Anneka BowmanDepartment Aboriginal Communities and Families Research Alliance, South Australia Health and Medical Research Institute, Adelaide, SA, Australia.
Philippa MiddletonStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Sue VlackSchool of Public Health, The University of Queensland, Brisbane, QLD, Australia.
Frances M BoyleStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Carrington ShepherdCurtin Medical School, Curtin University, Perth, WA, Australia.
Vicki FlenadyStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Deanna Stuart-ButlerStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Kym M RaeStillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
Mater Research · AUUniversity of Queensland · AUAustralian Red Cross Lifeblood · AUCurtin University · AUSouth Australian Health and Medical Research Institute · AUThe Kids Research Institute Australia · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The stillbirth rate among Aboriginal and Torres Strait Islander women and communities in Australia is around double that of non-Indigenous women. While the development of effective prevention strategies during pregnancy and improving care following stillbirth for women and families in communities has become a national priority, there has been limited progress in stillbirth disparities. With community permission, this study aimed to gain a better understanding of community experiences, perceptions, and priorities around stillbirth. We undertook an Indigenous researcher-led, qualitative study, with community consultations guided by a cultural protection protocol and within an unstructured research framework. A total of 18 communities were consulted face-to-face through yarning interviews, focus groups and workshops. This included 54 community member and 159 health professional participants across remote, regional, and urban areas of Queensland, Western Australia, Victoria, South Australia, and Northern Territory. Thematic analysis of consultation data identified common themes across five focus/priority areas to address stillbirth: Stillbirth or Sorry Business Baby care needs to be family-centered; using Indigenous "ways of knowing, being, and doing" to ensure cultural safety; application of Birthing on Country principles to maternal and perinatal care; and yarning approaches to improve communication and learning or education. The results underscore the critical need to co-design evidence-based, culturally appropriate, and community-acceptable resources to help reduce existing disparities in stillbirth rates.

Indexed as

Focus GroupsQualitative ResearchStillbirthAdultAustraliaAustralian Aboriginal and Torres Strait Islander PeoplesFemaleHumansInterviews as TopicMalePregnancyAboriginal and Torres Strait Islandersantenatal caregrief and lossIndigenousmaternal and infant healthperinatal lossSorry Businessstillbirth

Identifiers

PMID38689763
PMCPMC11059953
OpenAlexW4394856093

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.