ArticleAmerican journal of critical care : an official publication, American Association of Critical-Care Nurses2024
Integrating Perspectives on Family Caregiving After Critical Illness: A Qualitative Content Analysis.
Article in American journal of critical care : an official publication, American Association of Critical-Care Nurses, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Pilot Testing Post-Intensive Care Transitions Using Rehabilitation and Engagement To Heal ICU Survivors and Families (PICTURE-THIS)
Post-Intensive Care Transitional Care, Rehabilitation, and Family-Support RCT
Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Effects of eHealth interventions on psychological outcomes of post intensive care syndrome-family: a systematic review and meta-analysis.Frontiers in medicine · 2026Pooled it
- A Co-Designed Post-ICU Follow-Up Pathway Is Feasible and May Be Associated With Improved Psychosocial Recovery for Patients and Their Caregivers: Outcomes From the IMPACT-ICU Single-Center Randomized Controlled Trial.Critical care explorations · 2026Trial
- Post-Intensive Care Syndrome and Caregiver Burden: A Post Hoc Analysis of a Randomized Clinical Trial.JAMA network open · 2025Trial
- Strategies to Promote Resilience and Community Reintegration for Patients With New Disabilities After Critical Illness: A Qualitative Study Integrating Patient and Family Perspectives.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2026Article
- Traumatic memories and nursing experiences of ICU discharged patients: a systematic review and meta-synthesis of qualitative studies.BMC nursing · 2026Article
- Surrogate Perspectives on the Communication and Support Processes That Enable Them as Active Decision-Makers Across Chronic Critical Illness.CHEST critical care · 2026Article
- The role of family caregivers in critical illness survivor recovery at home: A qualitative study.Journal of health services research & policy · 2026Article
- Families' Experiences Making Decisions across Time and Settings in Chronic Critical Illness.Annals of the American Thoracic Society · 2025Article
- Improving Outcomes in Survivors of Sepsis-The Transition from Secondary to Primary Care, and the Role of Primary Care: A Narrative Review.Journal of clinical medicine · 2025Review
- Ableism After Critical Illness: A Qualitative Translation of Key Concepts to the Post-ICU Context.Critical care medicine · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
backgroundTo date, no intervention has definitively improved outcomes for families of critical illness survivors. An integrated perspective on caregivers' needs after critical illness could help identify high-priority intervention targets and improve outcomes.
objectivesTo obtain diverse perspectives on the needs, barriers and facilitators, and social determinants of health associated with family caregiving across the critical illness continuum and assess the extent to which successful caregiving interventions in other populations may be adapted to the critical illness context.
methodsThis qualitative content analysis of 31 semistructured interviews and 10 focus groups with family caregivers, health care providers, and health care administrators explored family caregivers' needs during post- intensive care unit (ICU) transitions and the barriers and facilitators associated with addressing them. Trained coders analyzed transcripts, identified patterns and categories among the codes, and generated themes.
resultsCaregivers have 3 instrumental needs: formal and informal support, involvement in care planning, and education and training. Only caregivers described their self-care and mental health needs. Social determinants of health are the key barriers and facilitators shaping the caregivers' journey, and caregiving as a social determinant of health was a prominent theme.
conclusionsCaregivers have instrumental, self-care, and mental health needs after critical illness. Adapting hands-on and skills training interventions to the post-ICU setting, while tailoring interventions to caregivers' health-related social context, may improve caregiver outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.