Evidence map›Paper›PMID 38686441›Full record

ArticleBJPsych open2024

The relationship between clinical presentation and the nature of care in adults with intellectual disability and epilepsy - national comparative cohort study.

Sarah Badger, Lance V Watkins, Paul Bassett, Ashok Roy, Mogbeyiteren Eyeoyibo, Indermeet Sawhney, Kiran Purandare, Laurie Wood, Andrea Pugh, Joanne Hammett and 3 more

Open access · goldAbstract read
In one paragraph

Article in BJPsych open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
5.0field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 9 citations in OpenAlex.

  1. Holistic management of epilepsy in adults with intellectual development disorders.Epileptic disorders : international epilepsy journal with videotape · 2026
    Article
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 9 institutions in 1 country.

Sarah BadgerCornwall Partnership NHS Foundation Trust, Truro, UK.
Lance V WatkinsUniversity of South Wales, Pontypridd, UK; Cornwall Intellectual Disability Equitable Research (CIDER), University of Plymouth Peninsula School of Medicine, Truro, UK; and Swansea Bay University Health Board, Port Talbot, UK.
Paul BassettStatsconsultancy, Amersham, UK.
Ashok RoyCoventry and Warwickshire Partnership NHS Trust, Coventry, UK.ORCID https://orcid.org/0000-0002-8432-981X
Mogbeyiteren EyeoyiboKent and Medway NHS and Social Care Partnership Trust, Gillingham, UK.
Indermeet SawhneyHertfordshire Partnership University NHS Foundation Trust, St Albans, UK.
Kiran PurandareCentral and Northwest London NHS Foundation Trust, London, UK.
Laurie WoodSwansea Bay University Health Board, Port Talbot, UK.
Andrea PughSwansea Bay University Health Board, Port Talbot, UK.
Joanne HammettSwansea Bay University Health Board, Port Talbot, UK.
Rory SheehanInstitute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
Samuel TromansSAPPHIRE Group, Department of Population Health Sciences, University of Leicester, Leicester, UK; and Adult Learning Disability Service, Leicestershire Partnership NHS Trust, Leicester, UK.ORCID https://orcid.org/0000-0002-0783-285X
Rohit ShankarCornwall Partnership NHS Foundation Trust, Truro, UK; and Cornwall Intellectual Disability Equitable Research (CIDER), University of Plymouth Peninsula School of Medicine, Truro, UK.ORCID https://orcid.org/0000-0002-1183-6933
Swansea Bay University Health Board · GBCornwall Partnership NHS Foundation Trust · GBCentral and North West London NHS Foundation Trust · GBCoventry and Warwickshire Partnership NHS Trust · GBHertfordshire Partnership University NHS Foundation Trust · GBKent and Medway NHS and Social Care Partnership Trust · GBKing's College London · GBUniversity of Leicester · GBUniversity of South Wales · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundA quarter of People with Intellectual Disabilities (PwID) have epilepsy compared with 1% of the general population. Epilepsy in PwID is a bellwether for premature mortality, multimorbidity and polypharmacy. This group depends on their care provider to give relevant information for management, especially epilepsy. There is no research on care status relationship and clinical characteristics of PwID and epilepsy.

aimExplore and compare the clinical characteristics of PwID with epilepsy across different care settings.

methodA retrospective multicentre cohort study across England and Wales collected information on seizure characteristics, intellectual disability severity, neurodevelopmental/biological/psychiatric comorbidities, medication including psychotropics/anti-seizure medication, and care status. Clinical characteristics were compared across different care settings, and those aged over and younger than 40 years.

resultsOf 618 adult PwID across six centres (male:female = 61%:39%), 338 (55%) received professional care whereas 258 (42%) lived with family. Significant differences between the care groups existed in intellectual disability severity (

conclusionPwID and epilepsy over 40 years in professional care have more complex clinical characteristics, increased polypharmacy and antipsychotic prescribing but fewer seizures.

Indexed as

care settingcomorbidityintellectual disabilitymental healthSeizures

Identifiers

PMID38686441
PMCPMC11060072
OpenAlexW4396518586

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.