Evidence map›Paper›PMID 38684247›Full record

ArticleBMJ open2024

The Pediatric Autism Research Cohort (PARC) Study: protocol for a patient-oriented prospective study examining trajectories of functioning in children with autism.

Anna Kata, Patrick G McPhee, Yun-Ju Chen, Lonnie Zwaigenbaum, Deepa Singal, Caroline Roncadin, Teresa Bennett, Melissa Carter, Briano Di Rezze, Irene Drmic and 19 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Short Report: An Examination of Children's Autism Traits and Their Association With Family Experience.Autism research : official journal of the International Society for Autism Research · 2026
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

29 authors.

Anna KataDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.
Patrick G McPheeDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.ORCID 0000-0001-5613-9755
Yun-Ju ChenDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.
Lonnie ZwaigenbaumDepartment of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
Deepa SingalAutism Alliance of Canada, Toronto, Ontario, Canada.ORCID 0009-0002-2452-5170
Caroline RoncadinMcMaster Children's Hospital Autism Program, Hamilton Health Sciences, Hamilton, Ontario, Canada.
Teresa BennettDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.
Melissa CarterDepartment of Genetics, Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada.
Briano Di RezzeSchool of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
Irene DrmicMcMaster Children's Hospital Autism Program, Hamilton Health Sciences, Hamilton, Ontario, Canada.
Eric DukuDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.
Sherry FournierChild and Community Resources, Sudbury, Ontario, Canada.
Julia FreiDepartment of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Stephen J GentlesDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.ORCID 0000-0003-2004-1451
Kathy GeorgiadesDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.
Ana Hanlon-DearmanDepartment of Pediatrics and Child Health, University of Manitoba, Winnipeg, Manitoba, Canada.
Lorraine HoultMcMaster Children's Hospital, Hamilton, Ontario, Canada.
Elizabeth KelleyDepartment of Psychology, Queen's University, Kingston, Ontario, Canada.
Judah KollerSeymour Fox School of Education, Hebrew University of Jerusalem, Jerusalem, Israel.
Olaf Kraus de CamargoCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.
Jonathan LaiAutism Alliance of Canada, Toronto, Ontario, Canada.
Bill MahoneyDepartment of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Ronit MestermanDepartment of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Olivia NgMcMaster Children's Hospital, Hamilton, Ontario, Canada.
Sue RobertsonMcMaster Children's Hospital, Hamilton, Ontario, Canada.
Peter RosenbaumCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.ORCID 0000-0001-6751-5613
Mackenzie SaltDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada.
Mohammad S ZubairiMcMaster Children's Hospital Autism Program, Hamilton Health Sciences, Hamilton, Ontario, Canada.
Stelios GeorgiadesDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada georgis@mcmaster.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe developmentally variable nature of autism poses challenges in providing timely services tailored to a child's needs. Despite a recent focus on longitudinal research, priority-setting initiatives with stakeholders highlighted the importance of studying a child's day-to-day functioning and social determinants of health to inform clinical care. To address this, we are conducting a pragmatic multi-site, patient-oriented longitudinal investigation: the METHODS AND ANALYSIS: We aim to recruit 1300 children under 7 years of age with a recent (within 12 months) diagnosis of autism from seven sites: six in Canada; one in Israel. Participants will be followed prospectively from diagnosis to age 8 years, with assessments at 6-month intervals. Parents/caregivers will complete questionnaires administered via a customized online research portal. Following each assessment timepoint, families will receive a research summary report describing their child's progress on adaptive functioning and related domains. Analysis of the longitudinal data will map trajectories and examine child, family and service characteristics associated with chronogeneity (interindividual and intraindividual heterogeneity over time) and possible trajectory turning points around sensitive periods like the transition to school. ETHICS AND DISSEMINATION: Ethics approvals have been received by all sites. All parents/respondents will provide informed consent when enrolling in the study. Using an integrated knowledge translation approach, where stakeholders are directly engaged in the research process, the

Indexed as

Autistic DisorderResearch DesignAdaptation, PsychologicalCanadaChildChild, PreschoolFemaleHumansInfantIsraelLongitudinal StudiesMaleProspective Studiesdevelopmental neurology & neurodisabilitypatient-centered carepatient participation

Identifiers

PMID38684247
PMCPMC11086431

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.