Evidence map›Paper›PMID 38680763›Full record

ArticleJournal of developmental and physical disabilities2024

Exploring the Perspectives of Parents of Individuals with Autism from Low-Resourced Communities to Inform Family Navigator Programs.

Meghan M Burke, Amanda N Johnston, W Catherine Cheung, Chak Li, Edwin Monárrez, Janeth Aleman-Tovar

Abstract read
In one paragraph

Article in Journal of developmental and physical disabilities, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. ADHD Prevalence Rose, Yet Disparities Remain: Commentary on the 2022 National Survey of Children's Health.Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Meghan M BurkeUniversity of Illinois at Urbana-Champaign, Dept. of Special Education, 1310 S. 6th St., Champaign, IL, 61820.
Amanda N JohnstonUniversity of Illinois at Urbana-Champaign, Dept. of Special Education, 1310 S. 6th St., Champaign, IL, 61820.
W Catherine CheungUniversity of Illinois at Urbana-Champaign, Dept. of Special Education, 1310 S. 6th St., Champaign, IL, 61820.
Chak LiUniversity of Illinois at Urbana-Champaign, Dept. of Special Education, 1310 S. 6th St., Champaign, IL, 61820.
Edwin MonárrezUniversity of Illinois at Urbana-Champaign, Dept. of Special Education, 1310 S. 6th St., Champaign, IL, 61820.
Janeth Aleman-TovarUniversity of Illinois at Urbana-Champaign, Dept. of Special Education, 1310 S. 6th St., Champaign, IL, 61820.

Funding

Testing a family service navigator program for low-resourced families of young children with autism spectrum disorderR34MH123584 · NIMH · VANDERBILT UNIVERSITY · PI BURKE, MEGHAN · 2021 to 2023
$770k
NIMH NIH HHS R34 MH123584
6 · The paper itself

Abstract

Family navigator programs (i.e., programs to train family navigators) are becoming increasingly common among families of children with autism. Family navigators (i.e., individuals who help families access evaluations and/or services) may be parents of children with autism themselves or health professionals. Extant research has shown that family navigators can help families receive timely diagnostic evaluations and initial services. Yet, the development of family navigator programs is unclear; by exploring the input of families of children with autism, such programs can be responsive to family needs. In this study, we extend the extent literature by exploring the lived experiences of 12 parents of autistic children from low-resourced communities to inform the development of a family navigator program. Findings demonstrated that navigator programs need to prepare navigators to address barriers such as limited knowledge and difficulty accepting an autism diagnosis. Navigator programs should teach navigators to use strategies with families including educating families about services and connecting families with peer support. Program content should reflect direct services, government services, and advocacy strategies. Notably, for true improvements to service access for all autistic children, systemic changes are also needed in the service delivery systems. Implications are discussed.

Indexed as

AccessFamilyNavigatorServices

Identifiers

PMID38680763
PMCPMC11052550

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.