Evidence map›Paper›PMID 38671655›Full record

ArticleChildren (Basel, Switzerland)2024

Final Validation of the Quality of Life after Brain Injury for Children and Adolescents (QOLIBRI-KID/ADO) Questionnaire.

Nicole von Steinbuechel, Marina Zeldovich, Dagmar Timmermann, Ugne Krenz, Inga K Koerte, Michaela V Bonfert, Steffen Berweck, Matthias Kieslich, Marlene Henrich, Knut Brockmann and 14 more

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

24 authors.

Nicole von SteinbuechelInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.
Marina ZeldovichInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.ORCID 0000-0003-0172-9904
Dagmar TimmermannDepartment of Psychosomatic Medicine and Psychotherapy, Division of Medical Psychology and Medical Sociology, University Medical Center Goettingen, Waldweg 37A, 37073 Goettingen, Germany.
Ugne KrenzUniversity Medical Center Goettingen, Robert-Koch-Str. 40, 37075 Göttingen, Germany.
Inga K KoertecBRAIN/Department of Child and Adolescent Psychiatry, Psychosomatics, and Psychotherapy, Ludwig-Maximilian University Hospital, LMU University, Nussbaumstrasse 5, 80336 Munich, Germany.
Michaela V BonfertDepartment of Pediatric Neurology and Developmental Medicine, LMU Center for Development and Children with Medical Complexity, Dr. Von Hauner Children's Hospital, LMU University Hospital, Haydnstr. 5, 80336 Munich, Germany.ORCID 0000-0003-0995-9050
Steffen BerweckSpecialist Center for Paediatric Neurology, Neurorehabilitation and Epileptology, Schoen Klinik, Krankenhausstraße 20, 83569 Vogtareuth, Germany.
Matthias KieslichDepartment of Paediatric Neurology, Hospital of Goethe University, Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Germany.
Marlene HenrichDepartment of Paediatric Neurology, Hospital of Goethe University, Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Germany.
Knut BrockmannInterdisciplinary Pediatric Center for Children with Developmental Disabilities and Severe Chronic Disorders, Department of Pediatrics and Adolescent Medicine, University Medical Center, Robert-Koch-Str. 40, 37075 Göttingen, Germany.
Anna BuchheimInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.ORCID 0000-0002-1339-5246
Maike RoedigerDepartment of Pediatrics and Adolescent Medicine, General Pediatrics, Intensive Care Medicine and Neonatology & Department of Pediatric Cardiology, University Hospital Muenster, Albert-Schweitzer-Campus 1, 48149 Muenster, Germany.ORCID 0000-0002-1985-9494
Michael LendtNeuropediatrics, St. Mauritius Therapeutic Clinic, Strümper Straße 111, 40670 Meerbusch, Germany.
Christian AuerJohannes Kepler University Linz, Altenberger Straße 69, 4020 Linz, Austria.
Axel NeuDepartment of Neurology and Neuropediatry, VAMED Klinik Geesthacht GmbH, Johannes-Ritter-Straße 100, 21502 Geesthacht, Germany.
Alexander KaiserDepartment of Neurology and Neuropediatry, VAMED Klinik Geesthacht GmbH, Johannes-Ritter-Straße 100, 21502 Geesthacht, Germany.
Joenna DriemeyerDepartment of Pediatrics, University of Hamburg-Eppendorf, Martinistrasse 52, 20246 Hamburg, Germany.
Sven GrevingUniversity Medical Center Goettingen, Robert-Koch-Str. 40, 37075 Göttingen, Germany.
Ulrike WartemannDepartment of Neuropediatrics, VAMED Klinik Hohenstücken GmbH, Brahmsstraße 38, 14772 Brandenburg an der Havel, Germany.
Daniel PinggeraDepartment of Neurosurgery, Tirol Kliniken GmbH, Medical University Innsbruck, Anichstrasse 35, 6020 Innsbruck, Austria.ORCID 0000-0002-9354-4669
Claudius ThoméDepartment of Neurosurgery, Tirol Kliniken GmbH, Medical University Innsbruck, Anichstrasse 35, 6020 Innsbruck, Austria.
Joachim SussDepartment of Pediatric Surgery, Wilhelmstift Catholic Children's Hospital, Liliencronstraße 130, 22149 Hamburg, Germany.
Holger MuehlanDepartment of Health and Prevention, University of Greifswald, Robert-Blum-Str. 13, 17487 Greifswald, Germany.ORCID 0000-0001-8048-5682
Katrin CunitzInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.ORCID 0000-0001-5530-8190

Funding

Deutsche Gesetzliche Unfallversicherung FR282Dr. Senckenbergische Stiftung/Clementine Kinderhospital Dr. Christ'sche StiftungenUniscientia Stiftung
6 · The paper itself

Abstract

Until recently, no disease-specific health-related quality of life (HRQoL) questionnaire existed for pediatric traumatic brain injuries (TBIs). In this revalidation study, the psychometric properties and the validity of the 35-item QOLIBRI-KID/ADO questionnaire in its final German version were examined in 300 children and adolescents. It is the first self-reported TBI-specific tool for measuring pediatric HRQoL in individuals aged between 8 and 17 years. The six-factor model fits the data adequately. The questionnaire's internal consistency was excellent for the total score and satisfactory to excellent for the scale scores. Intraclass correlations indicated good test-retest reliability, and the measure's construct validity was supported by the overlap between the QOLBRI-KID/ADO and the PedsQL, which measures generic HRQoL. The discriminant validity tests showed that older children and girls reported a significantly lower HRQoL than comparison groups, and this was also true of children who were anxious or depressed, or who suffered from post-concussion symptoms, replicating the results of the questionnaire's first developmental study. Our results suggest that the QOLIBRI-KID/ADO is a reliable and valid multidimensional tool that can be used together with the adult version in clinical contexts and research to measure disease-specific HRQoL after pediatric TBI throughout a person's life. This may help improve care, treatment, daily functioning, and HRQoL after TBI.

Indexed as

health-related quality of life (HRQoL)pediatric traumatic brain injury (TBI)QOLIBRI-KID/ADO

Identifiers

PMID38671655
PMCPMC11049366

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.