Evidence map›Paper›PMID 38669556›Full record

ArticleJournal of Parkinson's disease2024

In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.

Sneha Mantri, Jennifer L Purks, Daniel Kinel, Lakshmi Arbatti, Abhishek Hosamath, Allison Allen, Amy Amara, Karen Anderson, Lana M Chahine, Shirley Eberly and 6 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of Parkinson's disease, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Sneha MantriDepartment of Neurology, Duke University, Durham, NC, USA.
Jennifer L PurksDepartment of Neurology, University of Rochester, Rochester, NY, USA.
Daniel KinelDepartment of Neurology, Center for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
Lakshmi ArbattiGrey Matter Technologies, A Wholly Owned Subsidiary of Modality.ai, San Francisco, CA, USA.
Abhishek HosamathGrey Matter Technologies, A Wholly Owned Subsidiary of Modality.ai, San Francisco, CA, USA.
Allison AllenDepartment of Neurology, Duke University, Durham, NC, USA.
Amy AmaraDepartment of Neurology, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Karen AndersonDepartment of Psychiatry and Department of Neurology, Georgetown University, Washington, DC, USA.
Lana M ChahineDepartment of Neurology, University of Pittsburgh, Pittsburgh, PA, USA.
Shirley EberlyDepartment of Biostatistics and Computational Biology, University of Rochester, Rochester, NY, USA.
Soania MathurPD Avengers, Toronto, Canada.
David StandaertDepartment of Neurology, University of Alabama at Birmingham, Birmingham, AL, USA.
David OakesDepartment of Biostatistics and Computational Biology, University of Rochester, Rochester, NY, USA.
Daniel WeintraubDepartments of Psychiatry and Neurology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
Ira ShoulsonDepartment of Neurology, University of Rochester, Rochester, NY, USA.
Connie MarrasEdmond J. Safra Program in Parkinson's Disease, University Health Network, University of Toronto, Toronto, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.

Indexed as

Databases, FactualFearParkinson DiseaseAgedAged, 80 and overCognitive DysfunctionCost of IllnessFemaleHumansMaleMiddle AgedParkinson’s diseasequalitativequality of life

Identifiers

PMID38669556
PMCPMC11191490

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.