ArticleCurrent oncology (Toronto, Ont.)2024
Meaningful Patient Engagement in Adolescent and Young Adult (AYA) Cancer Research: A Framework for Qualitative Studies.
Article in Current oncology (Toronto, Ont.), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed.
- "I felt as though my life had come to an end": lived experiences of adolescents and young adults with cancer in Nepal.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- An Environmental Scan of Services for Adolescents and Young Adults Diagnosed with Cancer Across Canadian Pediatric and Adult Tertiary Care Centres.Current oncology (Toronto, Ont.) · 2026Article
- Understanding the Scope, Intent and Extent of Published Conceptual Frameworks of Frameworks for Patient and Public Involvement in Health and Social Care Research: A Rapid Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- What factors influence sexual and reproductive health care among adolescent and young adult cancer patients?: a novel serial focus group study.BMC cancer · 2025Article
- Cancer care for adolescents and young adults under the age of 50 in Saudi Arabia: policy review, research gaps, and future directions.EClinicalMedicine · 2025Review
- "Meet us where we're at:" Towards engaging and inclusive research with young adults with a lived experience of cancer.Journal of clinical and translational science · 2025Article
- Developing an Adolescent and Young Adult Oncology Program in a Medium-Sized Canadian Centre: Lessons Learned.Current oncology (Toronto, Ont.) · 2024Article
- From Empathy to Action: Exploring the Impact of Immersive Theatre Experience on Audience Members to Improve Adolescent and Young Adult Cancer Care and Support.Cancer control : journal of the Moffitt Cancer CenterArticle
Corrections and comments
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Authors and funding
14 authors.
Funding
Abstract
Over the last two decades, patient engagement in cancer research has evolved significantly, especially in addressing the unique challenges faced by adolescent and young adult (AYA) cancer populations. This paper introduces a framework for meaningful engagement with AYA cancer patient research partners, drawing insights from the "FUTURE" Study, a qualitative study that utilizes focus groups to explore the impact of cancer diagnosis and treatment on the sexual and reproductive health of AYA cancer patients in Canada. The framework's development integrates insights from prior works and addresses challenges with patient engagement in research specific to AYA cancer populations. The framework is guided by overarching principles (safety, flexibility, and sensitivity) and includes considerations that apply across all phases of a research study (collaboration; iteration; communication; and equity, diversity, and inclusion) and tasks that apply to specific phases of a research study (developing, conducting, and translating the study). The proposed framework seeks to increase patient engagement in AYA cancer research beyond a supplementary aspect to an integral component for conducting research with impact on patients.
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