Evidence map›Paper›PMID 38662471›Full record

ArticleAIDS patient care and STDs2024

A Call for Youth Voice to Support Engagement in Care for 18- to 29-Year Olds Living with HIV in the US South.

Catherine Johnson, Autumn Chidester, Divya Chandramohan, Hueylie Lin, Nhat Minh Ho, Anna Taranova, Ank E Nijhawan, Susan Kools, Karen Ingersoll, Rebecca Dillingham and 1 more

Abstract read
In one paragraph

Article in AIDS patient care and STDs, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Catherine JohnsonDepartment of Public Health, Innovation and Equity, University Health, San Antonio, Texas, USA.
Autumn ChidesterDepartment of Medicine, Division of Infectious Diseases, UT Health San Antonio, San Antonio, Texas, USA.
Divya ChandramohanDepartment of Medicine, Division of Infectious Diseases, UT Health San Antonio, San Antonio, Texas, USA.
Hueylie LinJoe R. and Teresa Lozano Long School of Medicine, UT Health San Antonio, San Antonio, Texas, USA.
Nhat Minh HoJoe R. and Teresa Lozano Long School of Medicine, UT Health San Antonio, San Antonio, Texas, USA.
Anna TaranovaDepartment of Public Health, Innovation and Equity, University Health, San Antonio, Texas, USA.
Ank E NijhawanDepartment of Internal Medicine, Division of Infectious Diseases and Geographic Medicine, University of Texas Southwestern Medical School, Dallas, Texas, USA.
Susan KoolsSchool of Nursing, University of Virginia, Charlottesville, Virginia, USA.
Karen IngersollUniversity of Virginia School of Medicine, Charlottesville, Virginia, USA.
Rebecca DillinghamUniversity of Virginia School of Medicine, Charlottesville, Virginia, USA.
Barbara S TaylorDepartment of Medicine, Division of Infectious Diseases, UT Health San Antonio, San Antonio, Texas, USA.ORCID 0000-0003-2471-9629

Funding

PositiveLinks for Youth and Emerging Adults (PL4Y): Adapting a multimodal evidence-based mHealth intervention to increase engagement in HIV care in the Southern USR34MH122332 · NIMH · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI TAYLOR, BARBARA S · 2020 to 2022
$730k
NIMH NIH HHS R34 MH122332
6 · The paper itself

Abstract

Youth with HIV (YWH) face challenges in achieving viral suppression, particularly in the Southern United States, and welcome novel interventions responsive to community needs. The Theory of Planned Behavior (TPB) describes factors that influence behavior change, and the Positive Youth Development (PYD) supports youth-focused program design. We applied TPB and PYD to explore factors supporting care engagement and challenges for YWH in South Texas. We conducted 14 semi-structured interviews with YWH and 7 focus groups with 26 stakeholders informed by TPB, PYD, and themes from a youth advisory board (YAB). The research team and YAB reviewed emerging themes, and feedback-aided iterative revision of interview guides and codebook. Thematic analysis compared code families by respondent type, TPB, and PYD. All study methods were reviewed by the UT Health San Antonio and University Health Institutional Review Boards. Emerging themes associated with care engagement included: varied reactions to HIV diagnosis from acceptance to fear/grief; financial, insurance, and mental health challenges; history of trauma; high self-efficacy; desire for independence; and desire for engagement with clinic staff from their age group. Stakeholders perceived YWH lifestyle, including partying and substance use, as care barriers. In contrast, YWH viewed "partying" as an unwelcome stereotype, and barriers to care included multiple jobs and family responsibilities. Two key themes captured in PYD but not in TPB were the importance of youth voice in program design and structural barriers to care (e.g., insurance, transportation). Based on these findings, we provide critical and relevant guidance for those seeking to design more effective youth-centered HIV care engagement interventions. By considering the perspectives of YWH in program design and incorporating the PYD framework, stakeholders can better align with YWHs' desire for representation and agency. Our findings provide important and relevant guidance for those seeking to design more effective HIV care engagement interventions for YWH.

Indexed as

Focus GroupsHIV InfectionsInterviews as TopicQualitative ResearchAdolescentAdultFemaleHumansMalePatient Acceptance of Health CareSocial StigmaTexasYoung Adultcare engagementHIVimplementation sciencequalitative analysisyouth with HIV

Identifiers

PMID38662471
PMCPMC11301709

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.