Evidence map›Paper›PMID 38657183›Full record

ArticleInternational journal of qualitative studies on health and well-being2024

There is 'no cure for caregiving': the experience of women caring for husbands living with Parkinson's disease.

Dawn R White, Patrick A Palmieri

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International journal of qualitative studies on health and well-being, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Review
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Dawn R WhiteCollege of Graduate Health Studies, A. T. Still University, Kirksville, MO, USA.ORCID 0000-0001-8910-9894
Patrick A PalmieriCollege of Graduate Health Studies, A. T. Still University, Kirksville, MO, USA.ORCID 0000-0002-0765-0239

Funding

HSRD VA HIR 10-001
6 · The paper itself

Abstract

backgroundParkinson's disease is a progressive neurodegenerative disorder. The majority of the nearly 9 million people living with Parkinson's disease are men. As such, caregiving is often assumed by wives as the disease progresses. However, there is little research about the lived experience of wives as they transition to caregivers.

objectiveTo describe the lived experience of wife caregivers of male spouses living at home with Parkinson's disease.

methodsA descriptive phenomenological study. Semi-structured interviews were recorded and transcribed for analysis in Atlas.ti using Colaizzi's method.

resultsThirteen women, aged 50 to 83 years, were interviewed. Five themes emerged from the analysis, (1) caregiver who? (2) taking it day by day, (3) not sure what to do next, (4) just too much, and (5) caring is your soul's growth, to support the central theme "there is no cure for caregiving."

conclusionTransitioning from wife to caregiver was a gradual but difficult process. Although the wife caregivers wanted to be part of the health care team, they remained outsiders. Clinicians need to recognize the wives as care coordinators linking medical management with home care. Policy makers need to develop reimbursement models that provide wife caregivers with support groups, education programs, and telemental health services.

Indexed as

CaregiversParkinson DiseaseSpousesAdaptation, PsychologicalAgedAged, 80 and overFemaleHumansMaleMiddle AgedQualitative ResearchSocial Supportcaregiver burdenCaregiversemotional exhaustionParkinson’s diseasephenomenologyqualitative research

Identifiers

PMID38657183
PMCPMC11044767

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.