Evidence map›Paper›PMID 38655511›Full record

ArticleFrontiers in public health2024

What supports and services post COVID-19 do children with disabilities and their parents need and want, now and into the future?

K Pozniak, A Swain, G Currie, A Doherty-Kirby, D Grahovac, J Lebsack, W Campbell, C Humphreys, S Patterson, S Raha and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Frontiers in public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

K PozniakCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
A SwainCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
G CurrieCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
A Doherty-KirbyCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
D GrahovacCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
J LebsackCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
W CampbellCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
C HumphreysDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.
S PattersonDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.
S RahaDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.
J WhitleyFaculty of Education, University of Ottawa, Ottawa, ON, Canada.
O Kraus de CamargoCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Children and youth with disabilities and special healthcare needs, and their families, have been uniquely affected by the COVID-19 pandemic. However, the voices of children themselves are still not well represented in the existing literature. Methods: This qualitative descriptive study used a combination of visual methods and interviews to learn about the experiences of Canadian children with disabilities (n=18) and their parents (n=14) during the COVID pandemic and into the post-pandemic period. Data collection was carried out between January and July 2023. The aim was to identify the supports and services children and families need at present and moving forward. Results: Families' pandemic experiences were complex and nuanced. For many, the pandemic complicated and disrupted everyday activities and supports. These disruptions were largely buffered by parents. However, some families also identified unexpected benefits. Key themes pertaining to present and future needs included the need for services that are flexible; consistent; conducive to relationship-building; comprehensive; coordinated across sectors; and designed to support the needs of the whole family. Discussion: Implications for policy and practice are outlined.

Indexed as

Children with DisabilitiesCOVID-19ParentsQualitative ResearchAdolescentAdultCanadaChildChild, PreschoolFemaleHealth Services Needs and DemandHumansMalePandemicsSARS-CoV-2Social Supportchildhood disabilitychildrenCOVID-19educationhealth service access and utilizationparentsqualitative researchyouth

Identifiers

PMID38655511
PMCPMC11036871

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.