Evidence map›Paper›PMID 38642180›Full record

ArticleJournal of autism and developmental disorders2025

Community Priorities for Outcomes Targeted During Professional Supports for Autistic Children and their Families.

Rhylee Sulek, Chris Edwards, Ruth Monk, Lee Patrick, Sarah Pillar, Hannah Waddington

Abstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Community views on the assessment and diagnosis of autism: Principles to guide clinical practice.Autism : the international journal of research and practice · 2026
    Article
  5. Article
  6. Article
  7. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Rhylee SulekMenzies Health Institute Queensland, Griffith University, Parklands Dr Southport, QLD, 4222, Gold Coast, Australia. r.sulek@griffith.edu.au.
Chris EdwardsMenzies Health Institute Queensland, Griffith University, Parklands Dr Southport, QLD, 4222, Gold Coast, Australia.
Ruth MonkAutism New Zealand, Lower Hutt, New Zealand.
Lee PatrickAutism New Zealand, Lower Hutt, New Zealand.
Sarah PillarTelethon Kids Institute, Perth, Australia.
Hannah WaddingtonFaculty of Education, Te Herenga Waka -Victoria University of Wellington, Wellington, New Zealand.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeProfessional supports play an important role in aiding autistic children's learning, participation, and overall wellbeing. Yet, limited research exists on stakeholders' perspectives and preferences regarding targeted outcomes for children undergoing support facilitated by professionals. This study investigated stakeholder views on the priority and appropriateness of outcomes intentionally targeted during the provision of supports to autistic children.

methodA survey of 181 participants (including 72 autistic adults, 85 parents, and 69 professionals) from Australia and New Zealand was conducted. Participants rated the appropriateness and priority of 47 potential child and parent outcomes within the context of support.

resultsThe highest priority outcome was improving child mental wellbeing, with the lowest being reducing sensory seeking or avoidant behaviours. Priority ratings for certain outcomes differed based on the child's age. Over half of the participants rated reducing sensory seeking/avoidant behaviours and reducing focused interests as inappropriate outcomes of supports. Further, variations in the appropriateness of outcomes differed among participant groups.

conclusionReflecting the growing acceptance of neurodiversity-affirming practices, these results underscore support for targeting outcomes that are meaningful to the autistic and autism communities, with less emphasis on those which reflect neurotypical behavioural standards.

Indexed as

Autistic DisorderAdolescentAdultAustraliaChildChild, PreschoolFamilyFemaleHumansMaleMiddle AgedNew ZealandParentsSurveys and QuestionnairesAutismCommunity perspectivesOutcomesPriorityProfessional supports

Identifiers

PMID38642180
PMCPMC12021951

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.