Evidence map›Paper›PMID 38638587›Full record

ArticleFrontiers in pediatrics2024

Partnering Early to Provide for Infants At Risk of Cerebral Palsy (PĒPI ARC): protocol for a feasibility study of a regional hub for early detection of cerebral palsy in Aotearoa New Zealand.

Angelica Allermo Fletcher, Gaela Kilgour, Meghan Sandle, Sally Kidd, Alison Sheppard, Stephanie Swallow, Ngaire Susan Stott, Malcolm Battin, Wyllis Korent, Sian A Williams

Open access · goldAbstract read
In one paragraph

Article in Frontiers in pediatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
3.3field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 6 institutions in 2 countries.

Angelica Allermo FletcherNeonatal Intensive Care Unit, Wellington Regional Hospital, Wellington, New Zealand.
Gaela KilgourNeonatal Intensive Care Unit, Wellington Regional Hospital, Wellington, New Zealand.
Meghan SandleChild Development Service, Wellington Regional Hospital, Wellington, New Zealand.
Sally KiddChild Development Service, Wellington Regional Hospital, Wellington, New Zealand.
Alison SheppardChild Development Service, Wellington Regional Hospital, Wellington, New Zealand.
Stephanie SwallowNeonatal Intensive Care Unit, Wellington Regional Hospital, Wellington, New Zealand.
Ngaire Susan StottDepartment of Surgery, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
Malcolm BattinNewborn Services, Auckland City Hospital, Auckland, New Zealand.
Wyllis KorentChild Development Service, Wellington Regional Hospital, Wellington, New Zealand.
Sian A WilliamsSchool of Allied Health, Curtin University, Perth, WA, Australia.
Education New Zealand · NZWellington Hospital · NZAuckland City Hospital · NZCurtin University · AUThe University of Queensland · AUUniversity of Auckland · NZ

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Cerebral palsy (CP) can now be diagnosed in infants with identified CP risk factors as early as three months of age; however, many barriers prevent equitable access to early detection pathways. The "Partnering Early to Provide for Infants At Risk of Cerebral Palsy" feasibility study (PĒPI ARC) seeks to trial a new approach to decrease inequitable health service in Aotearoa New Zealand for high-risk infants and their families. PĒPI ARC incorporates face-to-face clinics, an in-person and virtual Hub, and the use of telehealth to enable flexible access to CP assessments and support for health professionals in early CP detection. Methods and analysis: A non-randomised feasibility study was conducted from a tertiary Neonatal Intensive Care Unit (NICU) in Wellington and included seven regional referral centres, servicing nearly 30% of the total population in New Zealand (NZ). The families of infants with a high risk of neurodevelopmental impairment and health professionals interacting with the Hub were invited to participate. Mixed methods were used to evaluate the (i) equitable implementation of an early detection pathway, (ii) acceptability, (iii) demand among families and health professionals, (iv) efficacy in relation to reducing the age of receipt of CP diagnosis, and (v) the experiences around communication and information sharing. Ethics and dissemination: The NZ Health and Disability Ethics Committee approved this study (HDEC: 2022 FULL 13434). The findings will be disseminated in peer-reviewed journals, in conference presentations, and via professional networks. Clinical trial registration: Australian New Zealand Clinical Trials Registry: ACTRN12623000600640.

Indexed as

early developmentearly diagnosis (MeSH)General Movements Assessment (GMA)Hammersmith Infant Neurological Examination (HINE)health inequity

Identifiers

PMID38638587
PMCPMC11024469
OpenAlexW4393944372

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.