Evidence map›Paper›PMID 38629698›Full record

ArticleAutism : the international journal of research and practice2024

"I have to charge my social battery": Perspectives from autistic young adults on Quality of Life.

Elisabeth Øverland, Åshild Lappegard Hauge, Stian Orm, Merete Glenne Øie, Erik Winther Skogli, Elizabeth Pellicano, Per Normann Andersen

Open access · hybridAbstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
3.8field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 11 citations in OpenAlex.

  1. Article
  2. Article
  3. Supporting a 'good life' for autistic children: Autistic adults' and parents' perspectives.Autism : the international journal of research and practice · 2026
    Article
  4. Measurement Invariance of the PROMIS Family Relationships Scale Among Autistic and General Population Adolescents.Autism research : official journal of the International Society for Autism Research · 2026
    Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 3 countries.

Elisabeth ØverlandInnlandet Hospital Trust, Norway.ORCID 0009-0004-4601-697X
Åshild Lappegard HaugeInland Norway University of Applied Sciences, Norway.
Stian OrmInnlandet Hospital Trust, Norway.
Merete Glenne ØieInnlandet Hospital Trust, Norway.
Erik Winther SkogliInnlandet Hospital Trust, Norway.
Elizabeth PellicanoUniversity College London, UK.ORCID 0000-0002-7246-8003
Per Normann AndersenInland Norway University of Applied Sciences, Norway.ORCID 0000-0002-0242-7230
Innlandet Hospital Trust · NOUniversity of Oslo · NOUniversity College London · GBUniversity of Inland Norway · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

lay abstractIn this study we have asked a group of autistic young adults to describe what is important for their quality of life. The 14 participants (aged 21-29 years) were recruited from a 10-year follow-up study of autistic people. During interviews, our participants described the importance of having relationships with family, friends and pets. Having meaningful activities and being able to immerse themselves in particular interests was also reported to be important for a good quality of life. Interests had also guided their choice of what to study and what to do for work. They also spoke of how communication problems with professionals, bullying and sensory and emotional overload could have a negative impact on quality of life. Future interventions should focus on how professionals can help autistic people to connect to people/animals and meaningful activities, as the participants described this as important for having a good quality of life. These findings may be helpful in enhancing how passions and interests can be seen as opportunities for both academic and work careers for autistic people. Future research and interventions should also look at the communication barriers between autistic people and professionals, and how two-way understanding can be improved.

Indexed as

Autistic DisorderQuality of LifeAdultFemaleFollow-Up StudiesHumansInterpersonal RelationsMaleYoung Adultautismemerging adulthoodquality of lifereflexive thematic analysis

Identifiers

PMID38629698
PMCPMC11457465
OpenAlexW4394869126

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.