ArticleBMC palliative care2024
Patients' experiences with shared decision-making in home-based palliative care - navigation through major life decisions.
Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Patients' dignity in palliative care: An integrative review of lived experiences and family perspectives across cultures.Palliative medicine · 2026Review
- Potential profiles and associated factors of medication safety competence at home: a study in the older adults following percutaneous coronary intervention.Frontiers in public health · 2026Article
- Palliative care perceptions and well-being in nurses across healthcare settings: a comparative study from Reggio Emilia, Northern Italy.BMC palliative care · 2025Article
- Influence of Primary Care Physicians on End-of-Life Treatment Choices in Lung Cancer Diagnosed in the Emergency Department.Journal of personalized medicine · 2025Article
- Validation of a questionnaire to assess complexity of palliative care needs in primary care in Malaga, Spain: a study protocol.BMJ open · 2025Article
- Perspectives of Patients on Communication and Involvement in Decision-Making during Palliative Care: A Qualitative Study in Rwanda.Rwanda journal of medicine and health sciences · 2025Article
- Relationship Between Stroke Knowledge, Health Information Literacy, and Health Self- Management Among Patients with Stroke: Multicenter Cross-Sectional Study.JMIR medical informatics · 2025Article
- Navigating toward acceptance of death: Home-dwelling patients in the palliative phase.BMC palliative care · 2025Article
- Shared decision-making competency and its associated factors among palliative care nurses: a cross-sectional study in China.BMC nursing · 2025Article
- The value of home-based advance care planning in addressing existential concerns among older Norwegian patients with cancer and their relatives: A narrative ethnographic study.Palliative care and social practice · 2025Article
- Exploring Patient Preferences Related to Shared Decision-Making in Chronic Disease Management.Cureus · 2024Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
backgroundThis study addresses the issue of shared decision-making (SDM) in a Norwegian home-based palliative care setting. The significance of patient involvement in SDM is widely acknowledged, and many patients want to participate in decisions about care and treatment. Yet, it remains a need for more knowledge regarding the initiators and approaches of SDM in the context of home-based palliative care, particularly from the patients' perspective. The aim of this study is to understand patients' experiences and preferences for SDM in home-based palliative care, seeking to enhance the quality of care and direct the planning of healthcare services.
methodsWe used a qualitative explorative design. A hermeneutic approach was employed, and data was collected through in-dept interviews with 13 patients.
resultsThe study uncovered an overarching theme of "Navigating to reach own decisions," comprising three sub-themes: "To be trapped in life without decisions to act on"; "To surrender to others and let others deal with decisions"; "To continue to be oneself without focusing on disease and decision-making".
conclusionsThe findings underscore the need for flexible, person-centered approaches in SDM, tailored to the fluctuating health literacy and changing preferences of patients in palliative care settings. Our study contributes to the understanding of SDM in palliative care by highlighting how patients navigate the balance between autonomy and reliance on HCPs. Future research should explore how healthcare systems, including HCPs' roles in the system, can adapt to the patients' dynamic needs, to ensuring that SDM will remain a supportive and empowering process for patients at all stages of their disease.
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